Date: June 22, 2020 - June 24, 2020

To keep our families healthy and safe, the 2020 Family Conference scheduled for June 22-24 in Washington D.C. has been canceled due to the coronavirus (COVID-19) pandemic.

Individuals affected by many types of ectodermal dysplasia experience respiratory issues as well as compromised immune systems. You can read more about our decision and the risk our families face on our blog. We are disappointed that we will not see all of you but your health is our top priority!

Read About Cancellation

Registration Fee Refunds

If you had already registered for the Family Conference, you will receive a full refund of your registration fees credited to your credit card by the end of March.

Cancel Your Hotel Room

If you made a hotel reservation at the Sheraton Pentagon City Hotel, be sure to call them and cancel it.

Conference from Your Couch

We encourage you to check out the six free ectodermal dysplasia webinars we are offering in 2020. You can learn more about the conditions as well as their treatments and ask questions from our experts – all from the comfort of your couch! Whether it’s ENT issues or general health concerns, the webinars will cover a wide array of topics you may face. Take advantage of these great opportunities.

Register for Free Webinars

Virtual Advocacy Day on Capitol Hill

Advocacy Day will happen on Wednesday, June 24 – but virtually! It’s crucial that we continue on with our plans to call on Congress that day to ask for support of the Ensuring Lasting Smiles Act (ELSA). Everyone who registered for the Family Conference will automatically be registered for Virtual Advocacy Day. We invite all NFED families to participate in this June event.

Learn More and Register for Virtual Advocacy Day

Connect With Our Community

One of the best things about Family Conference is spending time with other families affected by ectodermal dysplasias. To help you build or expand your support network, we have several ways you can connect with families. You could contact your NFED Family Liaison, join one of our private Facebook groups or request a list of families in your area.

Connect With Families

Plan Now to Attend 2021 Family Conference

Next year, the NFED Family Conference will be in St. Louis, Missouri! We will also celebrate our 40th anniversary. It’s going to be an epic Conference that you will not want to miss.

Thursday, July 15, 2021 – Saturday, July 17, 2021
DoubleTree by Hilton St. Louis – Chesterfield

If you have any questions, please reach out to Kelley at or give her a call at 618-566-2020.