AI and the Ectodermal Dysplasias Patient Experience: Your Voice, Your Data, Your Journey
If you or someone you love lives with an ectodermal dysplasia, chances are you have already turned to AI for answers. Whether it is searching for a diagnosis, understanding a treatment option, or simply looking for someone who understands what you are going through, AI tools are reshaping how our community finds information and advocates for itself.
Join us for an important and honest conversation with Spencer Morrissey, Director of the PXI Center at the National Health Council, as we explore AI and the rare disease patient experience together.
In this 45-minute webinar, you will:
- Learn how AI is already shaping the diagnostic journey for people with ectodermal dysplasias
- Explore both the opportunities and the risks of using AI in your healthcare decisions
- Understand your rights when AI is being used in your care
- Walk away with practical, beginner-friendly guidance for using AI
NFED is here to make sure you are never navigating the hard questions alone. Register now. Space is limited.
