Date: February 20, 2020
Time: 12:00 am  to  12:00 pm

As part of Ectodermal Dysplasias Awareness Month, we’re celebrating the first International Ectodermal Dysplasias Awareness Day on February 20th. We’ll be joined by fellow support groups and organizations in the Ectodermal Dysplasia International Network.

Mark your calendar and #RiseUp4Rare!

What’s Happening


  • Wear blue and snap a photo to share with us on Facebook.
  • Update your Facebook or Twitter profile using our downloadable graphics to help spread the word.
  • Tune in to our Facebook Live video chat at 3 p.m. CST with NFED Executive Director Mary Fete.

Even if you can’t join in on the 20th, there are lots of other opportunities to get involved during Ectodermal Dysplasias Awareness Month. Learn about ways to rise up and volunteer.