Date: September 24, 2026 - September 25, 2026
Chicago, Illinois
The NFED is bringing together researchers, doctors and individuals affected by ADULT syndrome; ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome; ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome; and limb-mammary syndrome.
Our goal is to create a treatment protocol for the skin erosions or wounds people with these syndromes experience.