2026 Family Conference Special Guest Registration

"*" indicates required fields

X/Twitter

This field is for validation purposes and should be left unchanged.

Registration Information

How many adults (18 and older) will be attending?*

How many children (birth – 17) will be attending?*

Total Number of Attendees

Please indicate your involvement with the NFED.*

Check all that apply

SAC Member or Guest Speaker

Affected Individual or Family Member

NFED Staff

Partner or Affliate

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Please list how your name, title, and affiliation should be listed in the Family Conference Program*

Name of Partner/Affiliate Organization*

Address*

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Phone Number*

Phone Type*

Email Address*

Please indicate the type of ectodermal dysplasia that affects your family.

Please specify type of ectodermal dysplasia*

T-Shirt Size*

Dietary Restrictions (Check all that apply)*

We do our best to accommodate all food allergies; however, there may be instances where it’s not possible to guarantee complete allergen-free preparation due to the nature of the kitchen environment. There will always be some options available to meet requests. All meals are served buffet style.

Please specify allergy*

Do you need any specific accommodations to ensure that you’re able to fully participate in the conference? If yes, please tell us more. (This could include anything related to wheelchair, deaf or hard of hearing, vision accessibility, or other considerations)

Yes (please specify below)

Please specify the accommodations or considerations needed

Additional Attendees

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Name

First Last

Preferred Name (if different than above)

Pronouns

Preferred pronouns

Self-Identification

Please specify

Date of Birth

This field is hidden when viewing the form

Age

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size

Will be attending Kays' Kids Camp or Teens Program (determined by age)

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation

Yes

Dietary Restrictions (Check all that apply)

Please specify allergy

Yes (please specify below)

Please specify the accommodations or considerations needed

Releases

I give permission to the NFED to distribute the names of my family members attending, city, state, and syndrome to the other conference attendees.*

Yes

I consent to the National Foundation for Ectodermal Dysplasias (NFED) using photographs and video recordings of me and/or my family and hereby irrevocably grant the NFED the perpetual right to use my name and likeness as incorporated in any such photographs or video recordings. I agree that the NFED shall own all rights, title and interest to such photographs and video recordings, and that the NFED may edit, modify, and distribute such photographs without limitation, and without compensation, further permission or notification from me. I hereby waive any inspection or approval of use. I also waive and release the NFED from any claims based upon invasion of privacy or right of publicity.*

Yes

In consideration of the acceptance of this registration entry, I/we the undersigned, assume full responsibility for any injury or accident which may occur while I/we am/are attending this conference. I/we hereby release and hold harmless the sponsors, promoters and all other persons and entities associated with this event from any and all personal injury or damage, whether it is caused by negligence of the sponsors, promoters or other persons or entities. Applications for minors will be accepted only if signed by a parent or guardian.*

I agree

Signature*

Date*