How to Use the Advocacy Tool

Watch this tutorial video to learn how to fill out the advocacy tool above to contact your members of Congress about the Ensuring Lasting Smiles Act.

Next Steps

Now that you have contacted your legislator, we have lots of great information on how to meet your legislators close to home. Peruse our tips for preparing for your advocacy meeting. We walk you through what to expect, items to take along and action to take afterwards.

You will also want to check out our advocacy resources, including our state leads and ELSA Advocates Facebook Group. We also have sample personal stories you can read. These stories will help you in preparing to share your own story with ectodermal dysplasia, whether that’s in an email, on a phone call or in person. And don’t forget to download our advocacy flyer, which you can use as a leave behind at your legislator meeting.

Serve as a State Lead

We have volunteers serving as advocacy leads in the following states. If you would like to be a state lead or want to contact the lead in your state, email Becky Abbott, co-chair of our Family-Driven Advocacy Committee.

Alabama
Morgan Rigsby

Alaska

Arizona
Cynthia Howard

Arkansas

California
Evelyn Olive, Amy Vandenberg

Colorado
Sam Mueller

Connecticut
Ashley Turner

Delaware

Florida
Lauren Rizzo

Georgia

Hawaii

Idaho

Illinois
Beth Orchard

Indiana
Laura Steyer

Iowa
Jenny Steele

Kansas
Da’Nella Anderson

Kentucky

Louisiana
Kristin Robins, Randi Walker

Maine

Maryland
Christine Gottschalk, Jordan Kahn

Massachusetts
Jonathan Weil

Michigan
Julie Claeys

Minnesota
Karl Nelsen

Mississippi

Missouri
Christina Hartmeyer

Montana

Nebraska

Nevada

New Hampshire

New Jersey

New Mexico
Cody Snell

New York
Kerri Fasulo

North Carolina
Kara Roberts

North Dakota

Ohio

Oklahoma
Kristalyn Pittman

Oregon
Jack Kriz

Pennsylvania
Dawn Oldenski

Rhode Island
Laura Locke

South Carolina
Jamie Duke

South Dakota

Tennessee

Texas

Utah

Vermont

Virginia
Kevin Koser

Washington

West Virginia

Wisconsin
Becky Abbott

Wyoming