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Topic: Breasts, Hypohidrotic Ectodermal Dysplasia, Medical, Resource

Women who have hypohidrotic ectodermal dysplasia (HED) or who are carriers of x-linked hypohidrotic ectodermal dysplasia (XLHED) can face challenges when they begin breastfeeding such as trouble producing milk. We recommend that you make a breastfeeding plan with your doctor or a
lactation specialist.

Use this article to learn about how XLHED affects the breast and how this can impact breastfeeding. Plus, if your baby is also affected by XLHED, there can be additional challenges.

By educating yourself on how abnormal breast development can affect your ability to breastfeed, it will help manage your expectations. You may also want to share this resource with your care provider team and lactation specialists along with other NFED resources on this topic.

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