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Topic: Medical, Teeth, Tool Kits

Dental care is a medical necessity for those affected by ectodermal dysplasias, but most health insurance claims related to this care are automatically denied. We encourage individuals and families as well as dental providers to download our Dental Providers Insurance Tool Kit as a way to navigate this tricky situation.


Help patients get health benefits for the dental care of ectodermal dysplasias. The tool kit includes proven strategies for working with medical insurance companies, a list of common diagnostic codes, and letters of support from the NFED Board and Scientific Advisory Council that can be shared with insurance carriers.


Navigating health insurance claims can seem daunting, but this tool kit is something quick and easy to download and provide to your dental provider. It was prepared by a dental office administrator with experience getting benefits for all 50 of their patients with ectodermal dysplasias. You can do this, and we’re here to help.

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