‹ Back To Library
Topic: Allergies, Dental, Ears, Eyes, Gastroenterology, Hair, Hypohidrotic Ectodermal Dysplasia, Medical, Nails, Nose, Resource, Respiratory, Skin, Sweat Glands, Teeth, Throat, Webinars

This is a recording of a webinar that took place on April 8, 2020.

The NFED polled families to ask what questions they had. Drs. Butcher and Fete present information about common health concerns both children and adults who have ectodermal dysplasia experience.

You will learn:

  • Signs and symptoms of ectodermal dysplasias
  • The importance of immunizations
  • Facts about COVID-19, how it impacts ectodermal dysplasia and precautions to take
  • Genetic testing
  • MRSA infections
  • Kidney and brain issues in Goltz syndrome
  • Dental anomalies and dietary choices, and more!

About the Experts

Clayton Butcher, MD, Med Peds

Dr. Clayton Butcher is a physician at the University of Missouri – Columbia and practices both internal medicine and pediatrics. His clinical interests include preventative medicine and inpatient pediatrics. He has served on the NFED’s Scientific Advisory Council since 2015. He likes to use his knowledge in both pediatric and internal medicine to address ongoing challenges faced with individuals with ectodermal dysplasia as they transition from kids to adults.

Dr. Tim Fete

Dr. Tim Fete is Professor Emeritus in the Department of Child Health at the University of Missouri School of Medicine. He has retired after 41 years of clinical care as an Academic General Pediatrician and Pediatric Hospitalist. His research interests are related to growth and development in the various ectodermal dysplasia syndromes. He now devotes his professional time to advocacy efforts for the welfare of children and families.  He has served on the NFED Scientific Advisory Council since 1993, and also serves on the Boards of the Missouri Chapter of the American Academy of Pediatrics, Ronald McDonald House of Mid-Missouri and as President of the Board of the Missouri Immunization Coalition. He is the recipient of multiple teaching awards from Saint Louis University and the University of Missouri, and several advocacy awards from Missouri, Colorado and Utah. 

Please fill out the following form to access the resource:

  • This field is for validation purposes and should be left unchanged.