The Rinehart and Rigsby families began the Notes with Hope fundraiser as a way to give back to NFED in honor of their children, Carter and Mary Alys, who are both affected by hypohidrotic ectodermal dysplasia.

Stationery With a Story

Despite challenges, they’ve found joy and confidence through art. Their drawings—full of color, imagination, and resilience—have been turned into stationery you can use to share encouragement and love with others.

Every pack of stationery sold supports the mission of the NFED and strengthens the push to pass the Ensuring Lasting Smiles Act (ELSA). By choosing this stationery, you’re not just sending a card – you’re sending hope. 

Visit noteswithhope.org and order your stationery today! Every pack helps to spread awareness, and the proceeds benefit the NFED!

Over the years, we have advocated alongside the NFED for ELSA, gotten to know the community of individuals involved and relied on resources the NFED provides. We are happy that we can give back in a small way, while also spreading education about ectodermal dysplasias.