Translating Discovery to Therapy
![](https://nfed.org/wp-content/uploads/2024/07/header-artwork.png)
February 20-22, 2025
The conference will bring together clinicians, researchers, and young investigators to present and discuss current approaches and future directions for translating science to therapy for incontinentia pigmenti (IP). Our goal is to advance our ability to diagnose and manage this rare disease through the development of screening guidelines, effective diagnostics, and novel therapies.
![](https://nfed.org/wp-content/uploads/2024/07/IP-Conference-Flyer.png)
Topics to Advance
IP Diagnosis and Screening
Family Burden – Patient Perspective
Clinical Features of Disease
Sight Threatening Complications
Current Practices and Treatment Protocols
Genetic Aspects of Disease
Molecular Pathways
Development of Novel Therapies
Our Featured Speakers
![](https://nfed.org/wp-content/uploads/2024/07/J-Peter-Campbell-MD-MPH-headshot.jpeg)
J. Peter Campbell, M.D., M.P.H.
![](https://nfed.org/wp-content/uploads/2024/07/Chen-connie-300.jpg)
Connie Chen, M.D.
![](https://nfed.org/wp-content/uploads/2024/07/Goldberg-Morton-300.jpg)
Morton F. Goldberg, M.D.
![](https://nfed.org/wp-content/uploads/2024/07/han-ian-300.jpg)
Ian Han, M.D.
![](https://nfed.org/wp-content/uploads/2021/11/J.-Timothy-Wright-Photo-2021.jpg)
Timothy Wright, D.D.S., M.S.
Participants
Internationally recognized clinicians, researchers, and young investigators with expertise in developing and applying novel treatments in relationship to IP. Early career investigators are defined as postdoctoral fellows, graduate students, junior faculty (less than 10 years from obtaining terminal degree), and residents.
Registration
Deadline – January 10, 2025, 5 p.m. EST
On-site and virtual registration will be limited.
Register NowTravel Grant Opportunity
Deadline – December 1, 2024
Early career investigators are invited to submit abstracts. A maximum of 10 of these investigators will be selected to receive a $1,000 travel grant to attend the meeting in-person and present their work. Submit by Dec. 1, 2024 by completing the registration form.
Conference Location
Embassy Suites by Hilton Charlotte Uptown
The conference will be a hybrid meeting with the keynote speakers and key researchers/clinicians present onsite with others invited to participate virtually.
For More Information
Contact Mary Fete, M.S.N., R.N., C.C.M. at 618-566-2020 or mary@nfed.org.
Download Conference Flyer![](https://nfed.org/wp-content/uploads/2024/08/IP-Conference-Sponsors.png)