At the NFED, we recognize that cost can be a barrier to getting needed treatments and services associated with an ectodermal dysplasia diagnosis. The Treatment Assistance Program (TAP) is designed to provide financial stipends to families needing assistance. Applications will be accepted until October 1, 2026 or until the funds are depleted.

Eligibility and Services Funding Amounts Application

Important Application Information

Who is Eligible to Apply?

  • Any individual who has a diagnosis of an ectodermal dysplasia and meets our income criteria is eligible to apply. Unfortunately, we are not able to approve funding requests outside of the United States.
  • If you are receiving treatment at an NFED Dental Treatment Center, you can also apply to the Treatment Assistance Program if you meet the criteria.
  • Individuals receiving funding for dental care or wigs can reapply to the Treatment Assistance Program every 5 years from the date of payment.
  • A five-year funding period with a lifetime maximum award of $15,000 will apply to each approved applicant.

✅ Eligible Services & Items

• Dental treatment for all ages.
• Wigs.
• Air conditioners.
• Cooling vests.
• Genetic testing.

🚫 Items NOT Covered by TAP

• Orthodontic Treatment
• Everyday necessities.
• Electric bills.
• Central air-conditioning.
• Diapers.
• Routine tooth cleaning.
• Experimental services/treatments OR services/treatments completed prior to TAP application approval (except for genetic testing stipends).

How Much Funding is Available?

Each year, our Board of Directors sets the TAP budget based on available funds. TAP awards are provided as stipends to help with the cost of treatment and may not cover the full cost of care. Because the number of applicants continues to grow, the cost of oral health care continues to rise, and funds are limited, awards for a specific treatment may be capped at a certain dollar amount. This approach allows us to help as many individuals and families as possible.

As a result, the amount awarded may be less than the amount requested. We make every effort to support care that addresses the need in the most effective and affordable way. Families are asked to contribute to the cost of care, as their financial situation allows, whether for a wig, an air conditioner, or dental treatment.

Other Application Information

  • Funds will only be awarded for services/treatments that address the direct effects of an ectodermal dysplasia.
  • The NFED will only pay for services/treatments within the submitted treatment plan.
  • Payments will only be made to the approved care provider after treatment is completed (except for genetic testing stipends).
  • A new application will need to be submitted for new services or providers to be considered.
  • The NFED reserves the right to ask for additional information before making a funding decision.