Fundraising Progress
Let me introduce you to Joshua. Born with a rare form of ectodermal dysplasia, Joshua faced overwhelming challenges from his very first breath. His fragile skin, multiple surgeries, and countless infections could have broken his spirit. Instead, they shaped his resilience.
skin erosions of his scalp.
For the first 17 days of Joshua’s life, doctors were unsure of his diagnosis. It wasn’t until a compassionate resident suggested ectodermal dysplasia that his family found the National Foundation for Ectodermal Dysplasias (NFED). That moment gave them hope—and a community they could lean on.
Today, Joshua is a thriving 15-year-old who doesn’t let his condition define him. He’s a swimmer, an adventurer, and a friend to many. Despite having undergone 51 surgeries, he faces life with courage and a heart full of gratitude, not grief.
I might have a diagnosis of ectodermal dysplasia but it will NEVER have me.
– Joshua
But Joshua’s journey isn’t over, and many more children and adults like him need our support. Your donation to the NFED ensures that individuals affected by ectodermal dysplasias receive the care, love, and resources they need to live their best lives.
With your help, we can continue to be the lifeline these families depend on.
Together, we can do more! Please give today.
Gratefully,
Mary Fete, MSN, RN, CCM
Executive Director
We invite you to donate either through PayPal or by credit card with the secure form below.
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