It’s important for individuals affected by incontinentia pigmenti (IP) to see a care provider who is a specialist for their eyes. This might be a pediatric ophthalmologist and/or a retinal disease specialist. The IP experts who chaired the NFED’s Incontinentia Pigmenti Conference developed the following list of specialists who would be qualified to treat IP issues.
Mexico
Nancy Arias Gonzalez
Hospital San Javier, Torre Médica 2
José María Heredia 2960
Guadalajara Jalisco 44670
(331) 055-5392
Doctor
Taiwan
Wei-Chi Wu, M.D., Ph.D.
Chang Gung Memorial Hospital
5 Fu-Hsin St.
Kweishan Taoyuan 333
(886) 332-8120
Ophthalmologist
United Kingdom
Chien Wong, M.D.
Great Ormond Street Hospital for Children
Great Ormond Street
London
(203) 369-2020
Ophthalmologist
Pediatric and Adult Retina Specialist
United States
Audina M. Berrocal, M.D.
Bascom Palmer Eye Institute
900 NW 17th St.
Miami, FL 33136
(304) 482-5100
Ophthalmologist
Pediatric and Adult Retina Specialist
Michael P. Blair, M.D.
Retina Consultants, Ltd.
2454 East Dempster St.
Des Plaines, IL 60016
(847) 299-0700
Ophthalmologist
IP Provider
Katherine Brown, M.D.
Children’s Mercy Kansas City
3101 Broadway Blvd.
Kansas City, MO 64111
(816) 960-8000
Pediatric Ophthalmologist
IP Provider
J. Peter Campbell, M.D., M.P.H.
Oregon Health & Science University
545 SW Campus Dr.
Portland, OR 97239
(503) 494-7891
Ophthalmologist
Emmanuel Chang, M.D., Ph.D., FACS
Retina and Vitreous of Texas
6565 West Loop South, 4th Floor
Bellaire, TX 77401
(713) 799-9975
Ophthalmologist
Adult and Pediatric Retina Specialist
Emily Cole, M.D.
University of Colorado Anschutz Medical Center & Children’s Hospital of Colorado
1675 Aurora Court
Aurora, CO 80045
(720) 848-2020
Ophthalmologist
Adult and Pediatric Vitreoretinal Surgery
IP Provider
Mary Elizabeth Hartnett, M.D.
Byers Eye Institute
2452 Watson Court
Palo Alto, CA 94303
(650) 497-9152
Ophthalmologist Specializing in Pediatric Retina
Eileen Hwang, M.D., Ph.D.
University of Utah Moran Eye Center
65 Mario Capecchi Drive
Salt Lake City, UT 84132
(801) 581-2352
Ophthalmologist
Adult and Pediatric Retina Specialist
United States Continued
Alex Levin, M.D., M.H.Sc.
Flaum Eye Institute, University of Rochester
210 Crittenden Blvd.
Rochester, NY 14642
(585) 273-3398
Ophthalmologist
Sandra R. Montezuma, M.D.
University of Minnesota
420 Delaware St. SE
Minneapolis, MN 55455
(612) 625-4400
Ophthalmologist
Aaron Nagiel, M.D., Ph.D.
Children’s Hospital Los Angeles
4650 Sunset Blvd.
Los Angeles, CA 90027
(323) 361-2347
Ophthalmologist
IP Provider
Surgeon, Specializing in Retinal Disorders of Childhood and Adolescence
Nimesh A. Patel, M.D.
Massachusetts Eye and Ear / Harvard Medical School
243 Charles St.
Boston, MA 2114
(617) 523-7900
nimesh_patel2@meei.harvard.edu
Ophthalmologist, specializes in the medical and surgical treatment of vitreoretinal diseases
Prethy Rao, M.D., M.P.H., FACS
Retina and Vitreous of Texas
6565 West Loop South
Bellaire, TX 77401
(713) 799-9975
Adult and Pediatric Retina Specialist
IP Provider
Polly Quiram, M.D., Ph.D.
Retinal Consultants of Minnesota
3701 W 76th St.
Edina, MN 55435
(952) 929-1131
Ophthalmologist
Specializes in Pediatric Retinal Diseases and Retinal Surgery
IP Provider
Drew Scoles, M.D., Ph.D.
Children’s Hospital of Philadelphia
3500 Civic Center Blvd.
Philadelphia, PA 19104
(215) 590-2791
Ophthalmologist
Pediatric and Adult Retina Specialist
IP Provider
Robert Sisk, M.D., FACS, FASRS
Cincinnati Children’s Hospital
3333 Burnett Ave., Ophthalmology Division
Cincinnati, OH 45229
(513) 636-4751
Ophthalmologist
Vitreoretinal Surgeon for Pediatric and Adult Patients
Yoshihiro Yonekawa, M.D.
Wills Eye Hospital / Mid Atlantic Retina
840 Walnut St.
Philadelphia, PA 19107
(800) 331-6634
Ophthalmologist
Pediatric Retina Specialist
IP Provider
Benjamin K. Young, M.D., M.S.
Casey Eye Institute, Oregon Health & Science University
515 SW Campus Dr.
Portland, OR 97239
(402) 350-5159
Ophthalmologist
IP Provider
Pediatric and Adult Vitreoretinal Surgeon
Next Steps
It’s important that you do your research when you are searching for a care provider. Here are questions you can ask when choosing a doctor.
Also, learn about IP treatment guidelines for the eyes.