Past Conferences

The NFED hosted the Incontinentia Pigmenti Conference: Translating Discovery to Therapy, February 20-22, 2025, in Charlotte, North Carolina. This hybrid event brought together participants, both virtually and in-person from around the world, to discuss advancements in the understanding and treatment of incontinentia pigmenti (IP).

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Young child with TP63 syndrome

The NFED hosted the Complex Wounds in Ectodermal Dysplasias Conference, November 3-5, 2024, at the Children’s Hospital of Philadelphia (CHOP). The primary focus of the conference was to creating a strategic plan to address the challenges related to wound healing in individuals with ectodermal dysplasias, particularly those with TP63 Syndromes. 

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The NFED hosted the International Ectodermal Dysplasias Research Conference: Translating Discovery to Therapy, October 21-24, 2021, in Charlotte, North Carolina. The conference was a way to identify opportunities and overcome barriers with the ultimate goal of advancing early diagnostics and developing novel therapeutic strategies aimed at symptoms that cause significant morbidity in individuals affected by ectodermal dysplasias.

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