The Ensuring Lasting Smiles Act (ELSA) was introduced as a bill in the U.S Senate and House today. This legislation will significantly impact families affected by ectodermal dysplasias and other congenital anomalies. If passed, it will provide health benefits for their complex dental care.
People with certain types of ectodermal dysplasia are not able to sweat normally. Because of this inability to sweat, people with this symptom need to be especially careful in warm or hot environments. Not all people who are affected by ectodermal dysplasias will experience this symptom. Along those lines, an inability to sweat can occur…
Just as there are many different types of ectodermal dysplasias, there are also many different nail abnormalities that can occur in association with these conditions. The nail is a complex structure formed from the layer of the developing body known as the ectoderm. Nail symptoms for ectodermal dysplasias are fairly common, but not all people…
Several types of hair symptoms occur in ectodermal dysplasias. However, symptoms and severity can vary according to the type of ectodermal dysplasia that affects you or your family. To give you an idea of what those symptoms might be, we outlined the most common ways that hair can be affected. It’s worth noting that many…
Several types of skin symptoms typically occur in ectodermal dysplasias. However, these skin conditions and their severity can vary according to the type of ectodermal dysplasia affecting you or your family. To give you an idea of what those symptoms might be, we outlined the most commonly experienced skin symptoms of ectodermal dysplasias. It’s worth…
The National Foundation for Ectodermal Dysplasias (NFED) Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Come and spend three full days that will enhance your life! Our caring staff and families will welcome you to the Windy City with open arms and understanding. You will quickly experience–not just know–that you…
Skin erosion can be life-threatening for people affected by ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome. Two research labs are studying to understand the molecular defects that lead to skin erosions so they can ultimately develop therapies.
As a nonprofit organization serving the ectodermal dysplasias community committed to transparency, we are happy to share with you our 2017 Annual IMPACT Report. Here we report on just a few of the many activities and accomplishments from 2017.