Finding better treatments for ectodermal dysplasias takes teamwork. That’s why the NFED hosts scientific conferences, to bring top researchers together so they can share what they know, ask big questions and plan the next steps forward. When scientists work together, discoveries happen faster. These conferences help make sure the brightest minds are focused on the…
Sporting blue, families take to social media to celebrate their loved ones affected by ectodermal dysplasia.
2020 was a year full of challenges, but the NFED excelled in many ways. We brought hope into reality.
In her book Raising Charitable Children, Carol Weisman, internationally recognized philanthropy expert (and full disclosure – a friend of mine), discusses how to instill a sense of giving in children – and then watch them develop into generous, responsible, thoughtful, kind, loving and happy adults. Carol beautifully sums up her approach in one simple line:…
What do you hope and dream for? Read what six families dream about and NFED’s research campaign to make those dreams come true.
Even the tallest mountains can be scaled with enough small but purposeful steps Forever Forward. But not without decades of careful study, testing, steps forward, steps back, and the love and devotion of parents, families and you! Learn how you can help us with our campaign to advance research.
Presenter: Timothy J. Fete, M.D., M.P.H., Retired, University of Missouri Duration: 67 minutes With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! In this webinar, Dr. Tim Fete gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and…
Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.