The National Foundation for Ectodermal Dysplasias (NFED) is thrilled to announce two exceptional additions to our team: Andi Kezh as Communications Coordinator and Isabella Redding as Development Coordinator. Both bring a wealth of personal passion and professional expertise that align seamlessly with our mission of empowering individuals and families affected by ectodermal dysplasias. They will work with Greg Klimovitz, director of development and communications, to amplify our reach and increase our resources to better help the NFED community.
Andi Kezh: Bridging Personal Passion with Professional Impact
Born with a cleft lip and palate, Andi understands firsthand the value of community, advocacy, and support for individuals with genetic differences. Her journey has been marked by a deep commitment to the craniofacial community, where she has witnessed the transformative impact of organizations like the NFED.
“When I saw the job posting, I was immediately intrigued by the opportunity to intertwine my personal identity with my career,” Andi shared. “After interviewing with the wonderful staff, I knew the foundation would offer a perfect mix of my personal and professional goals.”
Andi brings experience in nonprofit health communications and marketing to her new role. Her expertise in community coordination, content development, and leveraging data for storytelling will be invaluable in strengthening NFED’s brand and outreach efforts.
Goals for the NFED
An Oglethorpe University alum with a bachelor’s in communications and media, Andi is particularly focused on enhancing the NFED’s connections with its community and amplifying its mission through innovative storytelling. She hopes to empower donors and fundraisers by creating meaningful opportunities for engagement, crafting compelling branded content, and spotlighting the powerful stories of individuals and families impacted by ectodermal dysplasias.
“I am honored to contribute to the nation’s only dedicated advocacy organization for individuals living with ectodermal dysplasias,” Andi says. “I want to make sure that the incredible work being done at the NFED is heard far and wide. Ultimately, I hope to help amplify our impact, drive greater support for research and advocacy, and ensure that we continue to advocate for healthcare equity for those living with rare conditions.”
Isabella Redding: A Champion for Healthcare Equity
For Isabella, joining the NFED is a natural extension of her lifelong dedication to improving healthcare access, particularly for underserved communities. Growing up in rural areas, she witnessed the challenges faced by individuals with rare or complex conditions, including her own mother, who lives with Ménière’s disease.
“My early experiences shaped my passion for healthcare equity,” Isabella reflects. “When I went to college at Boise State University, I pursued a bachelor’s of science in public health with a minor in nonprofit management. I was driven by the desire to create systemic change in healthcare access—particularly for marginalized communities. I’ve always believed that nonprofit solutions can be a powerful tool to address healthcare challenges, which is why I’m so excited to be part of the NFED.”
Her professional experience includes donor and volunteer management, community outreach, and event coordination—skills she is eager to apply at the NFED.
Goals for the NFED
Isabella aims to enhance the NFED’s development strategies, focusing on engaging donors, securing grants, and working with families and volunteers to host fundraisers. She is passionate about using her skills to amplify the foundation’s message and increase support for its programs.
“The work being done here—advancing research, advocating for individuals, and supporting families—is exactly what I was looking for: a chance to contribute to meaningful change for people!”
Looking Ahead
The addition of Andi and Isabella marks an exciting chapter for the NFED. Their combined expertise, passion, and dedication will strengthen our ability to support individuals and families affected by ectodermal dysplasias.
Please join us in welcoming Andi and Isabella to the NFED team. Together, we look forward to amplifying our impact and creating brighter futures for all those we serve.