In 1981, one mom had an idea that changed everything. Forty-five years later, the NFED has grown into a global community of 11,100 families. Read how we got here and look back and marvel at 45 accomplishments in 45 years!
Small NFED Fundraisers, Real Impact
Our families have found creative ways to fundraise for the NFED doing things that they love. Find out how they made friends, built community, and raised awareness along the way. Get inspired to have your own small fundraiser and make an impact!
Join Our Team: Director of Research
Be the Bridge Between Science and Hope The National Foundation for Ectodermal Dysplasias (NFED) is seeking a passionate, collaborative leader to serve as our Director of Research. This is your opportunity to make a lasting impact in the rare disease community by connecting groundbreaking research with the families who need it most. About This Role…
Putting People First: NFED’s New Executive Director Shares His Vision
We recently sat down with Greg Klimovitz, our new executive director as of October 2025, to learn what drew him to the Foundation, his vision, and how he hopes to build on the NFED’s success. In this Q&A, Greg talks honestly about why community is at the heart of everything we do. What are you…
From My Heart to Yours: Reflections as I Step Into Retirement
As Mary Fete prepares to retire, she looks back on an amazing journey with the NFED community. From nervous first days to unforgettable Family Conferences, she says she’s been inspired, challenged, and blessed. Join her in celebrating the people, moments, and progress that made her experience unforgettable.
Honoring Mary Fete’s Legacy of Love and Impact
Mary Fete is retiring after years of leading the NFED with heart, courage, and big ideas. She helped grow research, support families and strengthen programs. Read how her hard work and kindness shaped the NFED and why her legacy will guide our community for years to come.
Greg Klimovitz Named NFED’s Next Executive Director
Change is a part of every great story and today marks the beginning of an exciting new chapter for the National Foundation for Ectodermal Dysplasias. On behalf of the Board of Directors, we are pleased to share that Greg Klimovitz has been named as the NFED’s next executive director.
Executive Director Mary Fete Featured on Podcast
We’re excited to share that our Executive Director, Mary Fete, was featured on an episode of the Chief Influencer podcast! Mary discusses how leadership has shaped her work, and what our mission has done to make an impact.