Be the Bridge Between Science and Hope The National Foundation for Ectodermal Dysplasias (NFED) is seeking a passionate, collaborative leader to serve as our Director of Research. This is your opportunity to make a lasting impact in the rare disease community by connecting groundbreaking research with the families who need it most. Apply Now! About…
Putting People First: NFED’s New Executive Director Shares His Vision
We recently sat down with Greg Klimovitz, our new executive director as of October 2025, to learn what drew him to the Foundation, his vision, and how he hopes to build on the NFED’s success. In this Q&A, Greg talks honestly about why community is at the heart of everything we do. What are you…
From My Heart to Yours: Reflections as I Step Into Retirement
As Mary Fete prepares to retire, she looks back on an amazing journey with the NFED community. From nervous first days to unforgettable Family Conferences, she says she’s been inspired, challenged, and blessed. Join her in celebrating the people, moments, and progress that made her experience unforgettable.
Honoring Mary Fete’s Legacy of Love and Impact
Mary Fete is retiring after years of leading the NFED with heart, courage, and big ideas. She helped grow research, support families and strengthen programs. Read how her hard work and kindness shaped the NFED and why her legacy will guide our community for years to come.
Greg Klimovitz Named NFED’s Next Executive Director
Change is a part of every great story and today marks the beginning of an exciting new chapter for the National Foundation for Ectodermal Dysplasias. On behalf of the Board of Directors, we are pleased to share that Greg Klimovitz has been named as the NFED’s next executive director.
Executive Director Mary Fete Featured on Podcast
We’re excited to share that our Executive Director, Mary Fete, was featured on an episode of the Chief Influencer podcast! Mary discusses how leadership has shaped her work, and what our mission has done to make an impact.
Taking Big Steps Forward: 2025 NFED Family Conference
Nearly 300 attendees, including over 100 first-timers from five countries, gathered in Minneapolis for the 2025 NFED Family Conference. It was a heartwarming reunion filled with laughter, learning, advocacy, and unforgettable moments. Together, we took big steps forward, and left feeling inspired, supported, and filled with hope for what’s ahead.
Kristin Matus-Kelso Joins NFED Staff
Meet Kristin Matus-Kelso, our new Family and Community Programs Coordinator! With 20 years of personal experience in the ectodermal dysplasia community, Kristin is no stranger to the NFED.