Our Impact Report – 2023

Learn how the NFED’s unwavering passion translated into concrete action for our ectodermal dysplasias community. Look back on the expanded support, research advances, and advocacy efforts that shaped 2023. Together, we achieved great things!

How The Stand Together Conference is Unique This Year

This year’s summer event is going to look a little different than other years. Find out what you can expect when you attend the Stand Together Advocacy Conference and how you’ll leave empowered to advocate for yourself at home and on Capitol Hill!

2022 Impact Report

More than forty years ago, a group of people came together with a shared goal: to help those with ectodermal dysplasias. Today, the National Foundation for Ectodermal Dysplasias (NFED) is a global leader in supporting and advocating for those affected by ectodermal dysplasias. In 2022, the NFED provided support to nearly 10,000 affected individuals worldwide.

How Belonging to the NFED Has Benefitted 14 Families

Are you a part of the largest organization for families affected by ectodermal dysplasias? Some of our members weighed in on what they have found to be the biggest benefit of joining the National Foundation for Ectodermal Dysplasias. Find out why the NFED is where you belong!

We Reached New Heights Together at Family Conference

Our NFED family gathered in Colorado, for a weekend filled with educational workshops, research updates, and dental evaluations along with hugs, laughter and some tears. Mary Fete thinks it just may have been the best yet! Read about the impact, see the photos and learn where next year’s Family Conference will be!

An Easy Way to Double Your Impact at the NFED

Would you like to help search for free money for the NFED? It’s as easy as seeing if your company has a matching gifts program. Learn how these programs work and use our easy tool to see if your company will match your gifts.

Coming to Family Conference? Explore Colorado!

One of the best things you can do this summer is turn your Family Conference trip into a family vacation! Colorado is a beautiful place to explore and has something for everyone. Tack on a few days before or after the Conference for the perfect summer getaway. Our Conference will take place in Broomfield, Colorado,…

All Things Family Conference

On February 15, I had the pleasure of joining some new and returning families on a webinar to answer all of their questions about the NFED Family Conference, which will take place July 14 – 16. If you weren’t able to join us at the webinar, I want to share some of the great questions…