It’s Volunteer Appreciation Week and we have a lot of people to celebrate and thank. Our committed volunteers span the globe and lend their time, skills, and passion to make a real difference.
Financial Consultant Gives Heart and Time to Help Her Son’s Tribe
Marianne Vermeer’s “guardian angel” of a dentist encouraged her to get involved with the NFED. She jumped all in becoming an active volunteer and member of the Board of Directors. Read about the powerful moment she had as a volunteer and what she’s learned about children with ectodermal dysplasia.
Counselor Helps Families Better Understand the Genetics of Ectodermal Dysplasias
The NFED is grateful to have Pilar Magoulas volunteer her expertise as a genetic counselor on our Scientific Advisory Board. Read about why she things more counselors are needed, what the best route to get genetic testing is and why she likes working with the NFED.
New Child Psychologist on SAC To Create Resources You Need
The NFED is proud to welcome Dr. Patricia Marik to our Scientific Advisory Council. Learn what drew her to the NFED and how she aspires to help families affected by ectodermal dysplasias with their emotional health.
Pediatric Dermatologist Dedicates 26 Years to the NFED Family
Pediatric dermatologists are hard to find. Fortunately, the NFED has had an excellent one on our team in Dr. Elaine Siegfried. Read how about the impact she’s made and why she thinks the NFED is different than other organizations.
How Committed Volunteers Make the Mission
We are celebrating National Volunteer Month! It’s that special time when we salute all of you who step up and help our NFED families. Read how others are helping and how you can join our volunteer team!
How to Turn an Idea into Money for the Mission
Let’s work together during Ectodermal Dysplasias Awareness Month to fundraise! We can help you brainstorm and plan an activity or an event. You can also download tool kits we have to make it easy. Are you ready to plan some fun for a good cause?
Why I Volunteer
Find out what happened to Jack Kriz when he was 50 years old that finally made him feel whole, and why he always says yes when the NFED asaks for his help.