If you can’t sweat, how do you stay cool? Should you move to a cooler climate? Should you buy a cool vest? What cooling technique works best? We answer these questions and more in this document all about being cool.
Medicare and other benefits: Who pays 1st?
Medicare and other benefits: Who pays first? Managing multiple systems of benefits is complex. This information and guide will help you. https://ow.ly/ajg2y
Finding Money to Help Pay Your Family Conference Expenses
With a little searching and networking you can find money to help you attend a National Family Conference. Many families have been successful in obtaining funding from the sources below. It takes internet searches, phone calls and persistence. Call and ask about conference funding for families with special needs. If you hit a roadblock, ask…
Family Conference Scholarships Available
Family Conference Scholarships Available Application Deadline: April 13, 2012 We know that attending the National Family Conference can be expensive. That’s why we offer scholarships for qualifying families who need financial assistance to attend the National Family Conference in Orlando, Florida this summer. These scholarships can include waived registration fees and/or hotel stay reimbursement. Preference…
Remembering Reverend Charles J. Sheffield
Today, we remember with great admiration and gratitude, Reverend Charles J. Sheffield, who passed away March 13th in Florida. Reverend Sheffield was instrumental in the early years of the NFED and was one of three people who signed our articles of incorporation. In 1981, when Mary Kaye Richter was forming the NFED, Pastor Sheffield was…
2011 Halloween Bash Update!
A while back, we posted the “Save the Date” information for the 11th Annual Halloween Bash, an evening to benefit the National Foundation for Ectodermal Dysplasias in New York City, NY on Thursday October 27th, 2011. Please, check out the complete invitation! Tell your friends about this great fundraising event! How about placing an ad in…
Walk for Ectodermal Dysplasias 8 October 2011
Our good friends of Delta Theta Tau Sority, Inc are hosting a walk to benefit the NFED on October 8th, 2011 in Bethel, MO at 7AM. Registration and waiver due before September 30, 2011. $15 Entry fee includes t-shirt.
Bruno's Golf Outing 10 September 2011!
Bruno’s 16th Golf Outing in Blue Island, IL sponsored by the Swierczeski family, to raise money for the National Foundation for Ectodermal Dysplasias was a huge success. The Swierczewski Family raised more than $11,000 with their golf outing on Saturday 10 Sept. It is all about spreading awareness, being visible & having fun doing so. Enjoy the pictures! Thanks to everyone…