The overall objective of this conference is to accelerate the development of novel therapeutics for complex wounds associated with ectodermal dysplasias. To this end, this conference will bring together experts in the fields of normal wound healing, chronic non-healing wounds, and wounds associated with genetic disorders.

This group of experts will identify significant gaps in our knowledge of complex wound biology and define the next steps in addressing wound healing challenges in patients affected by ectodermal dysplasias and other disorders associated with complex wounds.

The conference will combine brief presentations by participants with breakout sessions to define future research priorities and deliverables. In addition, we will address needs for the collection of patient skin and other biological materials necessary to facilitate future research endeavors.

Becky M. Abbott, M.P.H.
Director, Treatment and Research Advocacy
Family Affected by Ectodermal Dysplasia
National Foundation for Ectodermal Dysplasias

Brad A. Amendt, M.S., Ph.D.
Professor
Anatomy and Cell Biology
Carver College of Medicine
Orthodontics
College of Dentistry
University of Iowa

Bogi Andersen, M.D.
Professor of Medicine and Biological Chemistry
University of California, Irvine

Jenette Arreola, M.S.
Graduate Student
Department of Biochemistry and Molecular Biology
Brody School of Medicine
East Carolina University

Daniela Di Girolamo, Ph.D.
Researcher (Molecular Biology)
Center for Genetics Engineering (CEINGE)
University of Naples Federico II
Italy

C. Michael DiPersio, Ph.D.
Vice Chair of Research, Department of Surgery
Professor, Department of Molecular & Cellular Physiology
Albany Medical College

Fateme Fayyazbakhsh, Ph.D.
Assistant Research Professor
Department of Mechanical and Aerospace Engineering
Missouri University of Science and Technology

Mary Fete, M.S.N., R.N., C.C.M.
Executive Director
National Foundation for Ectodermal Dysplasias

Timothy J. Fete, M.D., M.P.H.
Emeritus Professor
Department of Pediatrics
University of Missouri School of Medicine

Ruth Geismar
Family Affected by Ectodermal Dysplasia

Smail Hadj-Rabia is M.D., Ph.D.
Professor of Dermatology and Genetics
Department of Dermatology and Reference Center for Rare Skin Diseases
Hôpital Necker-Enfants Maladies
Institut Imagine
University of Paris-Cité

Maranke I. Koster, Ph.D.
Professor, Department of Biochemistry and Molecular Biology
Brody School of Medicine
East Carolina University

Eric C. Liao, M.D., Ph.D.
Director, Center for Craniofacial Innovation
Surgery Vice Chair of Academic Affairs
Presidential Scholar Endowed Chair
Children’s Hospital of Philadelphia
Professor of Surgery, University of Pennsylvania

Whitney Longmate, Ph.D.
Assistant Professor
Department of Surgery
Department of Molecular & Cellular Physiology
Albany Medical College

Anna Mandinova, M.D., Ph.D.
Vice-Chair for Research, Department of Dermatology
Associate Director, Cutaneous Biology Research Center
Associate Professor, Harvard Medical School
Broad Institute MIT/Harvard, Associate Member
Harvard Stem Cell Institute, Affiliate Faculty
Massachusetts General Hospital
Harvard Medical School

Caterina Missero, Ph.D.
Professor of Molecular Biology
Center for Genetics Engineering (CEINGE)
University of Naples Federico II
Italy

Shirley Parraga, B.S.
Medical Student
Brody School of Medicine|
East Carolina University

Irena Pastar, Ph.D.
Professor
Dr. Phillip Frost Department of Dermatology and Cutaneous Surgery
Wound Healing and Regenerative Medicine Research Program
University of Miami, Miller School of Medicine

Maddison N. Salois, B.S.
Graduate Student
Department of Biochemistry and Molecular Biology
Brody School of Medicine
East Carolina University

Elaine Siegfried, M.D.
Professor of Pediatrics and Dermatology;
Director, Division of Pediatric Dermatology
Saint Louis University and SSM Cardinal Glennon Children’s Hospital

Cory L. Simpson, M.D., Ph.D., F.A.A.D. (he/him)
Assistant Professor
Department of Dermatology
Institute for Stem Cell and Regenerative Medicine
University of Washington

Stefano Sol, Ph.D.
Anna Mandinova Lab
Postdoctoral Research Fellow
Massachusetts General Hospital Cutaneous Biology Research Center
Harvard Medical School

Marjana Tomic-Canic, Ph.D.
Professor and Vice Chair of Research
William E. Eaglstein MD Chair in Wound Healing
Endowed Frost Investigator
Director, Wound Healing and Regenerative Medicine Research Program
Dr. Phillip Frost Department of Dermatology and Cutaneous Surgery
University of Miami Miller School of Medicine

J. Timothy Wright, D.D.S., M.S.
Editor-in-Chief
The Journal of the American Dental Association
Pediatric and Public Health
Adams School of Dentistry
The University of North Carolina