40 Years of Support

Andrew James’ first year of life was traumatic, requiring many ER visits for unknown reasons.

When his parents finally had a reason for their baby boy’s health challenges, ectodermal dysplasia, they turned to the NFED for support.

The NFED is proud to have supported the James family and other families like them for 40 years!

Forty Years of Driving Ectodermal Dysplasias Research

As we celebrate our 40th anniversary and reflect on the journey to this point, we can say with certainty that no other entity in the world has driven ectodermal dysplasias research more than the National Foundation for Ectodermal Dysplasias (NFED). It’s been our honor to lead. Yet, the gratitude goes to the families who volunteered for studies, the curious researchers who strived to make a difference, and the donors who funded the vision. Let’s look at four decades of advancing research!

The NFED Continues to Expand in Its First Decade

Our conversation with NFED founder Mary Kaye Richter and her son, Charley Richter, continues as we look back at the NFED in the 1980s. They share what it took for the Foundation to grow and thrive and the people that made it happen. Read how Richter’s can-do spirit drove the NFED’s success and inspired parents to expect great things for their children.

How Our NFED Family Came To Be

What was it like to be diagnosed with ectodermal dysplasia in the early 1980s? NFED founder, Mary Kaye Richter, looks back at the Foundation’s humble beginnings, its first decade of accomplishments and the extraordinary people and circumstances that fueled its success.

Thank You, Jodi, Editing Queen of the NFED

Jodi Edgar Reinhardt has dedicated 25+ years to the ectodermal dysplasias community as a staffer at the National Foundation for Ectodermal Dysplasias.

An Anniversary Gift for You

As you know, in 2016 the National Foundation for Ectodermal Dysplasias (NFED) community is celebrating our 35 anniversary!   This year, we celebrate 35 years of NFED success.  Over the years we have added tremendously to the body of knowledge of ectodermal dysplasias, made great strides in treatment and have had tremendous research successes. Thirty-five years…

35th Anniversary Celebration: A Magical Night for the NFED

Thank you so much to everyone who participated in our 35th Anniversary Celebration dinner! We are happy to say we surpassed our goal of $50,000 by raising more than $62,000 for our mission. Thank you all for your support and for making the event a success. We had more than 250 attendees who enjoyed our silent auction, mystery…