Ensuring Lasting Smiles Act Reintroduced to 119th U.S. Congress. Take Action Now.

  • Join Us
  • Get Involved
    • 2025 Family Conference
    • Connect With Our Community
    • Advocate
      • Ensuring Lasting Smiles Act
        • ELSA Supporters
      • Ways to Advocate
      • Advocacy Resources
        • Preparing for an Advocacy Meeting
      • Register as an Advocate
      • Advocacy Day on the Hill
    • Ways to Give
      • Smile Makers
      • Fundraise
      • Halloween Bash
    • Raise Awareness
      • February is Ectodermal Dysplasias Awareness Month
    • Attend an Event
    • Volunteer
      • Volunteer Application
    • Sign Up for Our Newsletter
  • Blog
  • Donate
National Foundation for Ectodermal Dysplasias
  • Home
  • About Us
    • Our Mission and History
    • How We Help
    • Leadership
    • Partners and Sponsors
    • Financials
    • Store
    • Contact Us
      • Update Your Profile
  • Learn
    • Library
    • Webinars
    • Symptoms
      • Skin Symptoms
      • Dental Symptoms
      • Hair Symptoms
      • Nail Abnormalities
      • Inability to Sweat
    • Types
      • Ankyloblepharon-Ectodermal Defects-Cleft Lip and/or Palate
      • Clouston Syndrome
      • Ectrodactyly-Ectodermal Dysplasia-Clefting Syndrome
      • Goltz Syndrome
      • Hypohidrotic Ectodermal Dysplasia
      • Incontinentia Pigmenti
        • Incontinentia Pigmenti Stages
        • Incontinentia Pigmenti Treatment
      • Oculodentodigital Syndrome
      • Trichorhinophalangeal Syndrome, Type 1
      • Tricho-Dento-Osseous Syndrome
      • TSPEAR–Related Ectodermal Dysplasia
      • Type Unknown
      • Witkop Syndrome
    • Diagnosis
    • Genetics and Inheritance
    • FAQs
  • Research
    • Participate in Research
    • Research Studies
      • X-Linked Hypohidrotic Ectodermal Dysplasia Studies
        • Research Timeline
      • P63 Syndrome Studies
        • Ankyloblepharon-Ectodermal Dysplasia-Clefting Syndrome Studies
        • Ectrodactyly-Ectodermal Dysplasia-Clefting Syndrome Studies
      • Ectodermal Dysplasia Classification Studies
      • Goltz Syndrome Studies
      • Type Unknown Studies
    • Research Impact
    • Scientific Conferences
      • Incontinentia Pigmenti Conference
    • Resources for Researchers
  • Treat
    • Choosing a Doctor/Dentist
      • Recommend a Doctor
    • Medical Treatment Options
    • Dental Treatment Options
      • Dental Treatment Centers
      • Straumann Dental Implant Program
    • Insurance Assistance Program
      • Family Roadmap and Resources
      • Navigating Health Insurance Claims
    • Treatment Assistance Program
    • Health Care Provider Resources
  • Thrive
    • Coping with a Diagnosis
    • Meet Our Families
    • What to Expect
  • Join Us
  • Get Involved
    • 2025 Family Conference
    • Connect With Our Community
    • Advocate
      • Ensuring Lasting Smiles Act
        • ELSA Supporters
      • Ways to Advocate
      • Advocacy Resources
        • Preparing for an Advocacy Meeting
      • Register as an Advocate
      • Advocacy Day on the Hill
    • Ways to Give
      • Smile Makers
      • Fundraise
      • Halloween Bash
    • Raise Awareness
      • February is Ectodermal Dysplasias Awareness Month
    • Attend an Event
    • Volunteer
      • Volunteer Application
    • Sign Up for Our Newsletter
  • Blog
  • Donate

Tag: Celebrate

Got Change? Help Us Celebrate 40 Years of Impact!

April 5, 2022December 7, 2022 by NFED Category: News

The NFED has ambitious goals for its 40th anniversary celebration year. Becoming a 40th anniversary sponsor will ensure we reach our goals and create more impact.

Categories

  • Advocacy
  • Education
  • Family Conference
  • News
  • Research
  • Stories of Hope
  • Syndromes and Symptoms
  • Tips and Advice
  • Volunteer Spotlights

Donate

Help lead the way to find better treatments and cures.

Donate Now

Stay in the Know

Get email updates on what's going on in our NFED community.

We'll only send you NFED related materials.

This field is for validation purposes and should be left unchanged.

We'll only send you NFED related materials.

Sign Up for Our
Newsletter
  • This field is for validation purposes and should be left unchanged.

  • Home
  • Blog
  • About Us
  • Get Involved
  • Learn
  • Research
  • Donate
  • Treat
  • Sitemap
  • Thrive
Contact Us
618.566.2020info@nfed.org
6 Executive Dr., Ste. 2
Fairview Heights, IL 62208-1360
Connect With Us
  • Facebook
  • YouTube
  • Pinterest
  • Twitter
  • LinkedIn
  • Instagram
Back to Top

©Copyright 2025 National Foundation for Ectodermal Dysplasias Privacy Policy