Joshua has endured 51 surgeries, life-threatening skin infections, overheating challenges and ever weeping eyes. His mom looks back on his childhood and journals about the medical issues Joshua faced and how they treated them. Read how this teenager is embracing life as an adventure and educating others about having AEC syndrome.
AEC Syndrome: What to Know If Your Baby is Affected
If your baby has been diagnosed with ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome or if you suspect he or she might be affected, you have come to the right place! Here are some key things to know and resources to help you care for your baby.
Missing Fingers Bonds Three Amigos
Having missing fingers can get you bullied. It can also help you find life-long friends. Read about Tyler, Zemery and Nollan’s special friendship and how going to the NFED Family Conference impacted them.