National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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Learn About the XLHED Newborn Study
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Latest News Upcoming Events

XLHED Women’s Forum

Family Conference is Full

Why You Should Care About the XLHED Research Study

10th Annual Rally for Ally

XLHED Women’s Forum

Family Conference - July 23rd

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Are you up-to-date? Updating your contact information is important so that you can continue to receive our newsletter, The Educator, e-news blasts and other important information regarding our events and programs. Please email us at info@nfed.org with your name, complete address, phone number and email address.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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