National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Learn about ectodermal dysplasias on

TV Show Features Ectodermal Dysplasias

Watch highlights from The Doctors TV show which featured international model, Melanie Gaydos and 10-year-old Keira Burell.

Learn About the XLHED Newborn Study
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Latest News Upcoming Events

Ectodermal Dysplasias Awareness Month

“The Doctors” to Feature Ectodermal Dysplasias

Still Time to Make Your Year-End Gift

Kayla’s 5K - 2015

Regional Family Conference - NY

Family Conference - Day 1

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360