National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Geismar Family

Join the Geismar Family in raising funds for ectodermal dysplasias.

It's Halloween season which means it's time for our largest fundraiser - the online Halloween Bash. No matter where you live, we invite you to participate in this virtual, spooktacular event!

Learn About the XLHED Newborn Study
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Latest News. Upcoming Events

You Are Invited to Our Halloween Bash

Rain Dampens Walk//Run But Not Spirits

Johnson No Sweat Scramble Draws 18 Teams

Beat the Heat 5K Fun Walk - Illinois

Randi Walker’s Lake Powell Half Marathon

Bowling for Bites - Ohio

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360