Join others affected by ectodermal dysplasias worldwide in February to unite for Ectodermal Dysplasias Awareness Month. Help us raise awareness of these rare conditions. Our campaign is focused on awareness of the symptoms, its impact on teeth and the need for a law in the United States to get coverage for treatment.
28 Facts in 28 Days
Every day at 9 a.m., we will post a fact about ectodermal dysplasias on our Facebook and Twitter pages. We encourage you to share these on your own social media. Will you commit to the daily challenge? Use our hashtags #ectodermaldysplasia and #EDAM. Tag 10 friends to become a part of this community effort!
Share Your Story
Help us honor people affected by ectodermal dysplasias by sharing your story. We welcome affected individuals, their loved ones and their care providers to tell us how ectodermal dysplasia has impacted their life. We hope to share as many stories as possible throughout February and the rest of the year on our Stories of Hope blog and on our social media.
Share NowAlso, consider going live on Facebook for a few minutes to share your story. You might want to prepare your talking points in advance. Tag the National Foundation for Ectodermal Dysplasias so we can see your videos!
Show Us Your Super Smiles Photo Gallery
We want to feature your beautiful smiles! Send us a picture of you or your loved one affected by ectodermal dysplasia and we will post it to the Super Smiles Photo Gallery on our Facebook page. You can send us your photo and give us permission to post it by clicking here.
Here are signs you can download and hold in your photos for the Gallery. Click on the image to download. Post a picture to your own social media, too.
Badges
Download and use our Ectodermal Dysplasias Awareness Month graphics for your profile picture or as your cover.
Profile Picture
Facebook Cover
Facebook Cover – Add Your Own Picture
Twitter Cover
Change Your Profile Picture
Change your Facebook profile picture on social media to one that celebrates Ectodermal Dysplasias Awareness! On your Facebook page, edit your profile picture. Choose “Add frame.” In the search bar, type “NFED.” You will see the frame that says “I advocate for super smiles. Ectodermal Dysplasias Awareness Month.”
Download Resources
Click on these flyers to download and post in your community.
Make a One-Time or Monthly Donation
Honor the person in your life who is affected by ectodermal dysplasia by making a gift in their name.
Donate NowHost a Facebook Fundraiser
Raising money – and awareness – for ectodermal dysplasias is easy when you host a Facebook Fundraiser for the NFED. Our goal is to have 28 Facebook Fundraisers for Awareness Month and raise $28,000. Could you ask your friends to give a gift of $28? That’s $1 for every day of Awareness Month. Facebook Fundraisers are easy to set up. But, if you need step-by-step directions and ideas on how to make it successful, download our Facebook Fundraising Tool Kit. If you have any questions, please contact Lea at 618-566-6871 or email her at lea@nfed.org.
Start Your Facebook Fundraiser for the NFEDShop
You can wear your ectodermal dysplasias awareness, too. Check out our store to get your shirts, shorts, headbands and messenger bags.
Follow Us
Follow us on social media to get the latest news and information, to share our posts and tweets, ask questions and connect with other people in our NFED family.
Contact Us
If you have questions or need more information about Ectodermal Dysplasias Awareness Month, contact Jodi at 618-566-6875 or email her.