Join us for conference from your couch!  We are excited to share with you the 2021 National Foundation for Ectodermal Dysplasias (NFED) Webinar Series. You won’t want to miss this stellar line-up of speakers and our most asked about topics.

Not only will each hour-long webinar provide lots of valuable information but you will be able to ask questions of the presenters. This is a space for you to connect not only with the presenter, but other families in the Zoom meetings. You will get to explore and share your feelings in a safe place, where others understand.  It will be a “virtual” gathering room.

Our presenters are qualified medical and dental professionals who have years of experience in the topics they are discussing, not to mention lots of experience with ectodermal dysplasias.  These are one-of-a-kind opportunities for you to talk to our experts!

Of course, they won’t be able to provide diagnoses but you will receive insights into your syndrome and treatment options for you to consider. You will want to take notes and share the information with your family and your team of doctors and dentists.  You will receive a gold mine of information to guide your decisions and inform your care provider at home.

Dr. Tim Fete speaks with Jacob Moss.

New This Year

Webinars will be set-up like meetings. Calling these “Zoom Meetings” rather than “Zoom seminars” helps better define the true intentions of these meetings – to connect on a more personal level and have the ability to ask questions.

You will have the option to turn on your camera to see who else joins each session.  This allows you to pick what you and your family are most comfortable with in regards to sharing personal matters.

Breakout rooms will be available during and after some sessions to connect further with other families.

Recordings will only be available to those who register and only for seven days. 


Do you like NFED swag?  If you live in the United States and you register for all eight sessions on or before Sunday, February 28 you will receive a swag bag of fun NFED items! Who doesn’t like free stuff?


You can apply for a scholarship if you need assistance in paying the webinars. There are a limited amount so you will want to apply as soon as possible.

Dr.s Blieden and Lewis speak with Conference attendees.

The Line-UP

Dental Treatment Options for Adults – February 9, 2021

The series will kick-off with a presentation and discussion on Dental Treatment Options for Adults.  Dr. Clark Stanford is nationally renowned and will present. He serves on multiple national and international committees. He is the recipient of 15 academic awards including the 2007 State of Iowa Regents Award for Faculty Excellence and the International Association for Dental Research Distinguished Scientist Award (2007). This will be an interesting and informative experience that you will not want to miss!

How to Treat Eye Concerns – March 9, 2021

Lauren Blieden, M.D. and Richard A. Lewis, M.D., M.S. will present information on different treatments for a variety of eye concerns. Dr. Blieden has served on the NFED Scientific Advisory Council since 2017. Dr. Lewis has served since 1994. You will not want to miss these two accomplished medical professionals share their insights and medical expertise.

Complex Syndromes Explained Simply – May 11, 2021

In this webinar, you will learn about many of the complex ectodermal dysplasia syndromes. Dr. Clayton Butcher has served on the NFED Scientific Advisory Council since 2015 and Dr. Tim Fete has served since 1993. They will cover topics that most NFED families face like allergies, respiratory issues, cognitive development, growth and nutrition, immune function, school issues, quality of life and more! In this interactive webinar, you will also have the opportunity to ask questions.

Sign-up for All 8 Webinars

These are just the first three webinars in the series of eight. Head to our webinars page to read more about the series and sign up.

We can’t wait for you and your family to interact with these amazing and compassionate professionals to gain support and insights that will be so valuable to you in both the short and long term.

The chance to connect with others affected by ectodermal dysplasias is an integral part of our mission that we want to extend to everyone!

Register today for the 2021 Webinar Series by clicking the button below!

Sign Up

Dr. Clark Stanford consulting with a family regarding their dental treatment.

2 comments on “2021 Conference From Your Couch”

  1. 1
    Lynnette Ann Davis on March 10, 2021

    how sad was so looking forwasrd to seeing everyone

    1. 2
      Kelley Atchison on March 11, 2021

      Yes, we miss Family Conference, too! We look forward to when we can all gather together again in-person. We hope you’ll join us for a webinar or two this year!

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