While there is little published about respiratory problems in ectodermal dysplasias, there is evidence to suggest an increased risk. Learn about the risks, potential causes and recommendations for prevention and treatment.
NFED Collaborates with Lab to Make Dentures for Kids
Has your dentist had a hard time finding a dental lab which could make dentures small enough for your child with ectodermal dysplasia? Are you a care provider searching for a dental lab to make small dentures for your pediatric patient? Learn how we can help!
The Olive Kids Don’t Sweat It
Auggie and Dakota Olive have hypohidrotic ectodermal dysplasia, but they don’t sweat it. Hear how they overcame multiple obstacles and swam their way to the national championships.
A History of Ectodermal Dysplasias Research Discovery
The National Foundation for Ectodermal Dysplasias (NFED) is making some noise in the world of ectodermal dysplasias! We are shaping the future, with new research studies and breakthrough treatments that are already changing lives. You are such an important partner as we follow this path of breakthrough treatments and potential cures.
How to Choose Safer Products for Your Sensitive Skin
Do you have sensitive skin? Find out what products are safer for you to use. Plus, find out the best way to test them.
XLHED Clinical Trial One Step Closer to Launching
Today, we received fantastic news for x-linked hypohidrotic ectodermal dysplasia! EspeRare and Pierre Fabre announced that the ER-004 clinical trial is posted on ClinicalTrials.gov. Find out what that means and how it impacts our XLHED families.
Join Us for a Free Virtual Family Trivia Event
Grab your friends and family for a fun-filled event to end the summer! We are hosting a FREE Virtual Family Trivia and Research Celebration Event.
Lea Celebrates 10 Years at the NFED
We recognize Lea Richardson’s 10 years of service to our NFED family. Learn about her dedication and commitment as what her role is at the Foundation.