Olivia Daniels has faced many challenges in her 22 years. She learned to channel her feelings and experiences into acts of service and kindness. She’s an amazing creative force for good! Find out how this pageant champion is using her platform to raise awareness of ectodermal dysplasias and serve others.
If you are related to an NFED staffer, there’s a good chance you have volunteered for the Foundation. Read about one husband who’s gone the extra mile to help serve our mission.
In her book Raising Charitable Children, Carol Weisman, internationally recognized philanthropy expert (and full disclosure – a friend of mine), discusses how to instill a sense of giving in children – and then watch them develop into generous, responsible, thoughtful, kind, loving and happy adults. Carol beautifully sums up her approach in one simple line:…
Mary Fete from the National Foundation for Ectodermal Dysplasias announces a change in plans for the 2021 Family Conference.
Hypohidrotic ectodermal dysplasia can affect a woman’s breast development. This, too, can impact her ability to breastfeed her child. Download our new resources to share with your doctor, nurses and lactation specialist and educate them. This will help your team prepare for how to help you!
Ava Nawrocki is a spirited, water lover who happens to be affected by A.D.U.L.T. syndrome. Parents, Erin and Tyler, share what motivates them to help Ava by volunteering for the NFED.
Nicole Fitzgerald spent many years not feeling like a woman because of how ectodermal dysplasia affected her hair, teeth, skin and breasts. She found her path to feeling beautiful and wants to share that with other women.
What does good dental care look like? Dr. Beau Meyer outlines five elements to help you know what to expect as you work with your dentist or dental team.