Suzanne lives in Pennsylvania with her husband, Will, and their children, Caitlin and Tyler. Mom and son are both affected by ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome.
This tenacious educator grew up never knowing that her symptoms were actually a part of a genetic disorder. In this interview, Suzanne discusses growing up without a diagnosis, finding her spouse, and educating doctors and others on how to treat people.
She talks about how she and Will chose to raise Tyler and how that has impacted him now that he’s an adult. With her spunky attitude, Suzanne offers inspiring words to be confident, believe in yourself and get involved.
Your support helps us advance our mission. We invite you to visit our “How We Help” page so you can see how your donation impacts and improves the lives of those affected by ectodermal dysplasias. We also would be so grateful if you shared this invitation to give with others. You can find resources on how to do that on our landing page: www.nfed.org/appeal2024. You can also simply share the link or posts from our social media. Indeed- together we can do more.
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Oh Suzanne, this is excellent. So happy to call you a great friend.