Women affected by ectodermal dysplasias can experience symptoms that are specific to being female and can be sensitive to talk about. We have a new library resource that these women will find useful for vulvar and vaginal care.
Advice on Treatment with Dental Implants in Hypohidrotic Ectodermal Dysplasia
Researchers have learned that the bone found in the jaws of individuals affected by hypohidrotic ectodermal dysplasia is extremely hard and can cause complications for dental surgery. Learn what your dentist should know if you are considering dental implants.
Ectodermal Dysplasia Treatment Videos Now Available
The one thing all our families want is information about ectodermal dysplasia treatment. You want to know what to expect for you or your child. You are seeking treatment options. You are looking for answers. That’s where the National Foundation for Ectodermal Dysplasias comes in. We now have six free videos of educational workshops from our 2017 Family Conference available to watch. You can hear from our experts, see their presentations and learn.
A Case Study: Dental Implants in a 23-Year-Old With Ectodermal Dysplasia
Dr. Jonathan Korostoff presents a case study of a 23-year-old male with ectodermal dysplasia who was seeking to replace his missing teeth with dental implants. He addresses the number of teeth missing, the treatment plan and the outcomes of the case.
Are Dental Implants Appropriate for Kids?
Understand the importance of age appropriate, medically necessary ectodermal dysplasia treatment.
Dentures for Kids
The NFED has always strongly advocated that children with ectodermal dysplasia get dentures by the time they start Kindergarten. Find out why and how the NFED can help pay for them.
Missing Teeth, Missing Benefits
It’s common for someone to be missing a tooth or even two teeth. Some studies report about 20% of all adults are congenitally missing at least one tooth. More than 5% of us lack one or more second premolars or upper second (lateral) incisors. Though, numerous missing teeth, is less common. Leads to Diagnosis When…
Is There a Genetic Test For Your Type of Ectodermal Dysplasia?
The National Foundation for Ectodermal Dysplasias, just 25 years ago, began supporting research. The research was to identify the genes which cause the 180+ ectodermal dysplasias. Those efforts have paid off. We know many of the causative genes for many of these conditions, but not all. We still have lots of work to do! One of…