Are you passionate about making a difference in the rare disease community? The National Foundation for Ectodermal Dysplasias (NFED) is looking for a Programs and Community Engagement Coordinator to join our team!
As a Programs and Community Engagement Coordinator, you’ll play a key role in ensuring the smooth execution of our programs. From coordinating events and managing resources to tracking program data and supporting access-to-care initiatives, this position is essential to the success of the NFED’s mission.
What You’ll Do:
- Organize and coordinate logistics for programs, workshops, and community gatherings.
- Support programs that help individuals access treatment and financial assistance.
- Manage program materials, inventory, and vendor relationships.
- Serve as a point of contact for participants, volunteers, and stakeholders.
- Track program data, registrations, and attendance to measure impact.
- Collaborate with the team to ensure seamless execution of all initiatives.
Why Join NFED?
NFED is in an exciting growth phase, expanding its impact and outreach. By joining our team, you’ll help enhance our programs to the community we serve and make a tangible difference in the lives of those affected by ectodermal dysplasias. We offer a supportive work environment, opportunities for growth, and the chance to be part of a cause that truly matters.
Resumes and cover letters are being received through April 9, 2025.
Thank you for your interest! We are no longer receiving applications for this position.
Easy and simple application process. Very well done!