Ten years later, we’re still fighting for ELSA—and it still matters. Soren and Morgan share why families need fair coverage and how advocacy brings hope. Learn what you can do to take action in your home state.
7 Reasons Why Youths Should Advocate for ELSA
Kids and teens have powerful voices and they can help change lives. Learn why speaking up for the Ensuring Lasting Smiles Act matters, how it affects real families, and how young advocates can make a big difference.
Government Shut Down Doesn’t Stop ELSA Advocates
Even a government shutdown couldn’t stop our amazing ELSA advocates! More than 150 people met with lawmakers in Washington, D.C. Find out how NFED families and friends made big progress for the Ensuring Lasting Smiles Act on Capitol Hill! Learn how you can help keep the momentum going to get ELSA passed.
How My Daughter and I Brought ELSA Advocacy Home to Utah
Read how a mom and her daughter from Utah worked hard to share their story and talk with lawmakers about the Ensuring Lasting Smiles Act. Their journey shows how being kind, not giving up, and meeting in person can make a big difference for families like theirs and for ELSA. She walks you through step by step what she did to be successful.
A Smile Shouldn’t Require a Miracle: Why We Need Insurance Reform for Genetic Dental Conditions
This is one person’s journey from growing up in Western Africa with ectodermal dysplasia to finally getting dental implants in the U.S. It’s about the challenges of treatment, the financial and insurance battles, and why we need laws to ensure everyone gets medically necessary dental care.
Taking Big Steps Forward: 2025 NFED Family Conference
Nearly 300 attendees, including over 100 first-timers from five countries, gathered in Minneapolis for the 2025 NFED Family Conference. It was a heartwarming reunion filled with laughter, learning, advocacy, and unforgettable moments. Together, we took big steps forward, and left feeling inspired, supported, and filled with hope for what’s ahead.
How a Mom and Daughter Held Their Own Impromptu Day on the Hill
When nine-year-old Keira and her mom, Tara, realized Maryland lawmakers hadn’t signed on to support the Ensuring Lasting Smiles Act (ELSA), they took action. With no meetings scheduled, they hit Capitol Hill, shared Keira’s powerful story, and made a big impact. Read about their bravery and how lawmakers took notice. Plus, find out creative ways you can advocate for ELSA.
How You Can Help ReIntroduce ELSA in Congress
Co-chairs of the National Foundation for Ectodermal Dysplasias (NFED) Family Advocacy Committee give an update on the reintroduction of the Ensuring Lasting Smiles Act (ELSA) in Congress.