ELSA took another leap forward today! The Ensuring Lasting Smiles Act was introduced in the new U.S. Congress with bi-partisan support in both the House and the Senate. 28 organizations are now supporting the bill which will provide insurance coverage for medical and dental care due to congenital anomalies such as ectodermal dysplasia.
What’s going on at the NFED?
Find out what the National Foundation for Ectodermal Dysplasias recently published in research, will be announcing about the Ensuring Lasting Smiles Act and is planning for 2019.
Why I Advocate
Kerri Fasulo is teaching her daughter how to use her voice to create positive change. Find out what they doing to help you and your family.
Fighting for Future Generations of My Family
Dylan Steyer is a three-year-old boy who simply wants to have teeth. He’s even asked his mom if he can have hers. Dylan only has 5 teeth due to hypohidrotic ectodermal dysplasia. Learn what his mom, Laura is doing to fight for his right to dental care.
Children Don’t Need Teeth?
Kevin Koser doesn’t think he should have to explain to his son with ectodermal dysplasia that he can’t have teeth because health insurance companies don’t feel teeth are necessary. So, he’s taking action and getting others to join him in advocating for the Ensuring Lasting Smiles Act.