Paul grew up feeling different and was bullied for his teeth. He followed a dark path for many years before deciding he wanted a different life. Today, he’s sober, married and helping others. His journey is honest and hopeful and living proof that no matter your past, your future can still be bright.
Top 5 Reasons You Can’t Miss the NFED Family Conference This Year
Thinking about coming to the Family Conference? This blog shares five big reasons you won’t regret it—from finding your family and learning from experts to giving your child true belonging. Add in hope, hugs, pool parties, and an ’80s dance bash, and you’ve got a summer highlight you’ll never forget.
Finding My Diagnosis, My Voice and a Community That Gets It
Imagine going 37 years without knowing why you faced so many health struggles. That was Lindsey’s life until she finally got answers. In this blog, she shares her journey from silence to strength, how she found community, and why she’s determined to advocate for her kids.
Taking Big Steps Forward: 2025 NFED Family Conference
Nearly 300 attendees, including over 100 first-timers from five countries, gathered in Minneapolis for the 2025 NFED Family Conference. It was a heartwarming reunion filled with laughter, learning, advocacy, and unforgettable moments. Together, we took big steps forward, and left feeling inspired, supported, and filled with hope for what’s ahead.
Why Lindsey and Keegan Keep Coming Back to Family Conference
Curious what brings families back to the NFED Family Conference year after year? Keegan and his mom, Lindsey, share why this event means so much to them and why after six years away, they’re attending this summer’s Conference.
How Music Helped Ally Blossom with EEC
Ally has never let ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome define her life. Thanks in part to the NFED community, music has helped Ally blossom into an inspiring young woman. She’s now on track to become a music therapist, where she’s sure to help and inspire countless others.
XLHED Research Success: The Power of Family Participation
Discover the incredible journey of XLHED research, where dedicated families and tireless efforts have led to life-changing breakthroughs. This inspiring story highlights how your participation can help shape the future of XLHED treatments. Don’t miss it!
You Wanna Be Where Everybody Knows Your Name: Family Conference 2025
The NFED Family Conference is more than an event—it’s where connections thrive, and worries melt away. Like the Cheers theme song, it’s a place “where everybody knows your name.” Don’t just take Kelley Atchison’s word for it. Listen as NFED families share the impact the Conference had on them.
Family Conference is a collection of stories of hope- we would love to see you there!