When Your Child Is Diagnosed With Failure To Thrive

It’s not easy when your child is not growing as expected. You want them to be healthy. A mom shares her emotional journey with her toddler who has failure to thrive (FTT) and hypohidrotic ectodermal dysplasia. Explore a new resource the NFED offers for FTT.

Growth and Nutrition for Children with Ectodermal Dysplasias

(This is an excerpt from A Family Guide to the Ectodermal Dysplasias Syndromes, published by the NFED.) Growth abnormalities are common in children with ectodermal dysplasias.  Weight deficits are present at an early age and persist throughout adolescence. Height deficits are seen primarily in children with ectodermal dysplasias other than hypohidrotic ectodermal dysplasia (HED). Parents…