Maddie’s journey with ectodermal dysplasia took a transformative turn when she expressed a desire to change her smile. With guidance from the NFED and a dedicated team of specialists, she found a path that preserved her teeth while boosting her confidence. Read her inspiring story of resilience and expert care.
Being Born Without Adult Teeth: From Resentment to Empowerment
Soren Roe used to hide the fact that he’s missing teeth. Now, he uses it as an opening line when he meets new people. Read how this 24-year-old has faced his fears and realized how ectodermal dysplasia has shaped his life.
Raising a Strong Daughter with HED
Leah Steenson was worried and scared when her daughter was diagnosed with ectodermal dysplasia but that all changed when she found the NFED. Find out how she’s teaching her happy kindergartener to speak up for herself and explain her condition.
Treating Hypodontia in Children
Hypodontia is one of the typical symptoms of ectodermal dysplasias. It means that one or more teeth are congenitally missing and may be small. For many affected individuals, it’s common to have just a few teeth. At the National Foundation for Ectodermal Dysplasias, we have always advocated that children – and adults – with ectodermal…