Charley Richter has attended 27 NFED National Family Conferences and Anil and Sean Vora have both attended 25. How close are you to reaching them? We will recognize our “repeat offenders” during Wednesday’s opening session. If you have attended at least five conferences, be prepared to be recognized!
Four Research Opportunities at the National Family Conference
Families attending the 2012 National Family Conference in Orlando, July 18-21, have the opportunity to volunteer for the four projects listed below. To participate, sign-up on the 2012 national family conference registration form. You will receive your assigned research times when you check-in at registration on Wednesday, July 18th at the conference. Questions? Email Mary…
A Doc’s Perspective on the NFED Family Reunion (aka Family Conference)
By Alanna F. Bree, M.D., NFED Scientific Advisory Council Attending the NFED Family Conferences are almost like a family reunion for me. Even though I am not related to anyone who attends, the people I have met through the NFED have become like an extended family to me. This includes babies, children & adults affected by…
Hope… from a mouse
As I sat and listened to Dr. Maranke Koster speak, yesterday and this morning, about the process of turning skin cells into induced pluripotent stem (iPS) cells, I was beyond amazed… I was filled with hope. Hope… from a mouse. If you had told me thirty years ago that I would one day look at…
Important: HED participants: Informed Consent Document & Medical Questionnaire
Attention HED Families participating in Research! There will be a meeting to inform participants about this research and answer any questions you may have on Thursday 21 July, 2011 from 5:30PM-6:30PM in Ballroom West! Please read the following carefully before you come to the National Family Conference if you are participating in the Edimer Pharmaceuticals,…