Your five-year-old daughter wearing her first dentures can be surreal. Just ask Sarah Hamilton. The mom shares about how the teeth have impacted Hazel’s eating and speech and how they are having to battle their insurance to get benefits.
Keep on Smiling: The Story of Lucy’s First Surgery
By Lucy Davies January 27th, 2017 is a date I will never forget. To most people, it marked the one week anniversary of Donald Trump’s inauguration, but I had something far more personal scheduled for that day – my first dental implant surgery. When growing up with ectodermal dysplasia, “implants” was a word constantly thrown…
Kick off the New Year by Becoming an NFED Smile Maker!
Join our quick, easy, and affordable monthly giving program, the National Foundation for Ectodermal Dysplasias (NFED) Smile Makers, today! Thousands of affected families and individuals have turned to the NFED as a pillar of hope. Please grow and sustain our work so we can continue to support our friends and family affected by ectodermal dysplasias….
My Smile – 23 Years in the Making – Part 3
By Jacob Moss This is part 3 of my dental implant story. Part two left off after I finished up my upper jaw bone graft. As previously stated, following the bone graft there was a period of about six months before it could be determined if the graft was successful. During that time I returned to…
Overwhelmed With Love and Belonging!
By Terri Andrews I was born in a little rural area in Alabama in 1959. Not much was known about ectodermal dysplasia nor the type of ectodermal dysplasias I was born with called ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. If I received any type of major treatment or surgery, I had to travel at least 100 miles, which was not…
The True Meaning In Life Is To Plant Trees, Under Whose Shade You Never Expect To Sit!
By Ashli Matus-George Allyson Kelso’s Aunt Founder, Rally for Ally When Ally was born on December 22, 2004 in Oxnard, CA, it was an exciting time. A new baby, Christmas for her three-year-old big sister, Morgan. My then fiancé, Tom, and I were recently engaged and planning a wedding, Kristin had a thriving career, and…
My Smile – 23 Years in the Making
By Jacob Moss On November 3, 2014, I completed my dental implant process. For the first time in my life I had a “permanent” set of teeth. As a 23-year-old man with hypohidrotic ectodermal dysplasia, permanent teeth had always been an abstract concept to me. The process was long and, at times, difficult; but now…
Are you a Repeat Offender?
Charley Richter has attended 27 NFED National Family Conferences and Anil and Sean Vora have both attended 25. How close are you to reaching them? We will recognize our “repeat offenders” during Wednesday’s opening session. If you have attended at least five conferences, be prepared to be recognized!