Are you heading to Falls Church, Virginia, this summer to attend the National Foundation for Ectodermal Dysplasias Family Conference? Our veteran attendees have some great tips for you.
- Some of the best knowledge you gain is from the interaction with other families.
- Ask,ask,ask…anything! Write down all your questions so you don’t forget. Everyone is there to help. None are silly and no one will be offended.
- We all come together to educate, empower, encourage, up lift, laugh with, learn with, learn from, and love each other.
- Get ready for an emotional journey of realizing you are not alone on this path and you never have to feel that way again.
- Get ready to meet your new family that you never knew you had and will now never want to live without.
- Come prepared to take it all in. Ask questions, socialize, plan to cry or to be cried on.
- Bring open arms that are ready for hugs.
- Bring tissues.
- It is an incredibly emotional experience where new friends and new information will amaze you.
- Attend as many events as you can.