Oliver Nehrkorn Dec 2015
Oliver helping his parents at their “Cookies for a Cure” awareness event in Oregon


Volunteering is a labor of love. Volunteering together as a family helps kids learn that they can make a positive difference in the lives of others.  It is a great way to teach the importance of becoming involved and giving back to our NFED community.

It gives children a sense of responsibility, compassion and a desire to help others who are affected by ectodermal dysplasias as they are. However, sometimes it seems like a “chore” and/or a bit overwhelming to many, and finding ways to make children feel excited about giving back can sometimes be difficult.

Volunteering together as a family fosters positive communication and strengthens bonds in ways no other activity can.  Let’s get started!

Initially, kids are likely to see volunteering as a chance to socialize with friends. Kids of all ages hosting bake sales, lemonade stands and/ or yard sales in their communities with their friends and families is a great way of bringing awareness to ectodermal dysplasias and the NFED as well as raise funds for a cause they care about.  There is nothing more powerful than kids helping kids.

Seth Cookies for a Cure
Seth Ferris selling his delicious cookies in Brooklyn , NY

Hence, we are introducing our newly established “Cookies for a Cure” program. It’s a great way for families to bond together for a great cause – your NFED!

For more info, email Seth Ferris at sferris@nfed.org or me  at lea@nfed.org. Or, call me at the office at 618-566-6871.

The NFED will provide the cookie labels to be put on the wrapped goodies and the NFED brochures for the awareness piece.

We ask that you work together as a family to bake and sell your variety of cookies. It’s that simple.  You can ask your family and/or businesses to donate the baking supplies and/or cellophane or Ziploc bags to hold your delicious cookies.

You can ask your family members or friends to help with set up, clean up, delivering goods to the sale location if not your front yard or garage or back yard.  Have a theme such as  snowflake cookies in January, a heart cookie with “NFED” written in icing during February (Valentine’s Day & NFED Awareness month), or a green clover cookie in March (St. Patrick’s Day).

Volunteering encompasses the spirit of giving, and donating the proceeds to your NFED can be so meaningful and extremely awarding. The best thing is getting your children excited about helping others in some small ways.

Let’s get started! Shoot us an e-mail or give us a call.


Happy Baking and Happy Selling.

Supporting You. Supporting Each Other.

Together we can make a difference.

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2 comments on “"Cookies for a Cure"”

  1. 1
    Happy Holidays! | National Foundation for Ectodermal Dysplasias on December 22, 2015

    […] “Cookies for a Cure”  […]

  2. 2
    What an Inspiration… | National Foundation for Ectodermal Dysplasias on February 12, 2016

    […] Meg inspired you to do an activity or event to raise money for ectodermal dysplasias? Consider Cookies for a Cure. Or, contact Seth Ferris at sferris@nfed.org to brainstorm and discuss your NFED […]

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