Our Donors Are the Lifeblood of the NFED
At the National Foundation for Ectodermal Dysplasias (NFED), our donors are more than just contributors. Their ongoing support is an integral part of our community. Every gift matters and represents a connection to the NFED mission, strengthening our shared goal to enrich the lives of individuals affected by ectodermal dysplasias.
Among these dedicated supporters, our Smile Makers stand out. This special group of monthly donors ensures our work remains sustainable.
Meet a Smile Maker: George’s Story
We recently caught up with George, a long-time supporter, monthly donor, and former NFED Board member, to hear why he continues to give monthly and what inspires his ongoing commitment to the NFED.
What inspired you to become a Smile Maker?
“I was first introduced to the NFED in college when I met Mary Kaye [Richter], and it quickly became an invaluable resource for me. Living with ectodermal dysplasia, I found immense support through the NFED, especially after college. That support became even more crucial when our two sons were born with ectodermal dysplasia.
Serving on the NFED board gave me the opportunity to see firsthand the incredible impact they have—bringing hope and making a real difference for families navigating ectodermal dysplasia. Being part of that mission, even in a small way, has been a true privilege.”
What does being a monthly donor mean to you personally?
Consistency of support is key.
George, monthly donor and former NFED Board Member
As a family, we knew early on that we wanted to be part of something bigger—to contribute in a way that made a lasting impact. The NFED accomplishes so much with a small budget, and by giving monthly, we can help sustain their incredible work. It’s our way of showing that we believe in the mission of the NFED, and we want to see it thrive.”
What do you hope your monthly support helps make possible?
“To me, the NFED represents hope and encouragement. A diagnosis of ectodermal dysplasia can be overwhelming, and many families struggle to find answers and navigate the challenges that come with it.
Through the NFED, families gain access to a supportive community filled with people who have walked this path before. That sense of connection is invaluable, especially for young families who may feel alone in their journey. My hope is that our support helps provide families with the resources, guidance, encouragement, and a network of people who remind them that they are never alone.”
George’s dedication reflects the spirit of so many in our Smile Maker community—individuals who give not just to support, but to make a lasting difference.
What is a Smile Maker?
A Smile Maker is a monthly donor who believes in the power of consistent, ongoing support. Their generosity provides essential funding, ensuring we can continue our mission every single month.
Our Smile Makers are the heartbeat of our organization. Their unwavering support provides more than just funding—it brings hope to the ectodermal dysplasia community. With every gift, they empower us to fulfill our mission and create a future where every patient’s voice is heard, and every story matters.
Mary Fete, NFED Executive Director
Why Monthly Giving Matters
- Sustained Impact: Recurring donations allow us to both plan ahead and respond to needs as they arise. Your monthly gift helps provide critical resources for families such as:
- Financial assistance through our Treatment Assistance Program
- Cooling vests for those who struggle with overheating
- Support for life-changing research
- Events like Family Conference, where families connect, learn, and find a sense of belonging
- Stronger Connections: SmileMakers receive special updates from Executive Director Mary Fete, with exclusive stories and insights about how their gifts are making a difference. You’ll hear firsthand how you are helping kids like Maddie and Brooklynn get the dental care they need, supporting families navigating insurance challenges, and strengthening our advocacy efforts to expand access to treatments.
- A Token of Appreciation: Each SmileMaker receives a custom NFED magnet as a small way of saying “thank you” for their commitment. More importantly, they become part of a community dedicated to ensuring that every child, adult, and family affected by ectodermal dysplasia gets the care and support they need.
Join Us. Become a Smile Maker Today!
When you become a Smile Maker, you are investing in education, support, advocacy, research, and the vital community that makes this all possible. Your support ensures that families affected by ectodermal dysplasias have the resources they need today and for years to come.
Thank you to all of our Smile Makers for believing in our mission and sustaining the work we do every day. Together, we are making a lasting difference- ensuring all those who are affected by ectodermal dysplasias receive the community, resources, and advocacy they deserve.
Greg Klimovitz, Director, Development and Communications
Are you ready to make an ongoing impact? Sign up today and become a Smile Maker!