She Was One of the Founding Families as a Toddler in 1981. Today, She’s an Advocate for the Community.

May 13, 2015July 25, 2019 Category: Stories of Hope Posted by NFED

Hi there,

My name is JoAnna Nix and I volunteered last fall to help represent the NFED at my local Combined Federal Campaign (CFC) and State Campaigns.  The NFED is known as the Skin and Dental Dysfunction Foundation #10604 by the CFC. Being a government employee, I’ve seen that government workers really do care about their communities and want to give back through some form of charity.

Giving back by way of monetary donations is made easy through a payroll deduction system that is already in place. They just elect to do so and choose their favorite charities to receive their donations.

What is great about these campaigns is that government workers take a break from their regular day and get the opportunity to meet some of the people behind their favorite causes and the strides they are making as a result of charitable donations.

They also have the opportunity to learn about charities that are not widely known. The NFED is definitely a charitable cause that not many have ever heard of and being represented at these campaigns is a way for us to spread awareness and become one of their favorites! You don’t have to be a government or state employee to voluteer at the CFC and/or State Campaigns.

Being an individual affected directly by ectodemal dysplasias (I was born with EEC) is also a very impactful way to help represent the NFED at these campaigns.  In most introductions, if not all, they are learning about ectodemal dysplasias for the very first time and what better way for them to learn about ectodemal dysplasias than through someone who has it and can testify personally on how wonderful the NFED has been in supporting our community.

The CFC and State Campaigns are a great outreach practice for not only gathering additional funding for the NFED, but for educating the public and creating an awareness about ectodemal dysplasias.

JoAnna Nix and her family were one of the original dozen families who founded the NFED in 1981 when JoAnna was just a toddler. Her blog is a part of our Helping Hand series featuring incredible NFED volunteers. learn more on our website about volunteering. 

Share Your Story