Receiving more than 6,000 visitors every month, we know that NFED.org is a critical, go-to resource for NFED families, professionals, researchers, and individuals affected by ectodermal dysplasias around the world. It is often the first place that new families enter the NFED, desperately looking for information and help.
We consider it the NFED front door. Our current site offers an abundance of treatment and management information, provides powerful stories about individuals in our community, and serves as the communication platform for all of our events.
However, if you’ve been to NFED.org recently, you’ve likely noticed that our web site is in desperate need of an update. Trying to find the information you need quickly is no easy task with our current layout, and its management for our staff is equally challenging. And yet, we have many valuable resources ready to share with you online.
Which is exactly why we’re so excited to announce that we will be revamping NFED.org in 2015 to better serve you and your family!
We’re striving to create a web site that is modern and easy-to-use. Of course, we will continue to meet our visitors’ information needs and to share our family’s stories. But we also want to help visitors to connect with the NFED community—either through social media, our blog, or email. And, finally, we want to give visitors a reason to come back to NFED.org again and again to see the most up-to-date content (including videos!), news and events.
But none of this will be possible without your help!
We’re reaching out to all of you, our generous members, and asking that you consider making a contribution to this exciting new venture. We are thrilled to develop a web site that is as dynamic and impactful as our community, but in order to create a truly useful product that will help you, we must commit ourselves financially.
Please join in the excitement and help us reach our goal of $60,000 with a financial gift that is appropriate for you. Simply visit our web site or call us directly at 618-566-2020 to make a direct donation. We can do this together!
Thank you in advance for your kindness and generosity!