Volunteer spotlight

This month, we thank four volunteers for their years of service and dedication to our Board of Directors (BOD). Three of them have served 10 or more years. They helped lead the National Foundation for Ectodermal Dysplasias (NFED) through the transition after our founder, Mary K. Richter, retired in 2010.

Serving on a Board requires an enormous amount of time. This can be difficult for busy professionals who are active in their careers and family life. Therefore, we are especially grateful for their time and their willingness to serve. We thank Liz Arro, C.P.A., David Freestone, M.D., John Stith, M.D. and Anil Vora.

While Anil’s Board term continues, he is ending his service as the President after many years.

Anil has done a tremendous job as our Board President. We especially appreciate his efforts to organize our financials and implement a better budget process. He always leads with a focus on our mission. We thank him for his leadership! – Mary Fete, NFED Executive Director.

We value your time, ideas, recommendations, leadership, hard work, and your continuous input. Thank you for bringing your passion, skills, knowledge, insight, experience and resources to the table as well.

Liz Arro

Liz aroLiz Arro is a Manager and CPA at RubinBrown LLP Assurance Services Group in St. Louis, Mo. She has volunteered on the BOD as a member of the Finance Committee since 2012.


Dr. David Freestone

david freestoneDr. David Freestone is a family medicine doctor in Ithaca, Mich. and NFED dad who has served on the BOD since 2003. We are grateful for his contributions to the Family Services, Family to Family Network, Nominating, and Strategic Planning committees. He also donated his time on the Family Support Council.


Dr. John Stith

Dr. John Stith is a Professor at the Division of Pediatric Otolaryngology at the Saint Louis University School of Medicine and practices at Cardinal Glennon Children’s Hospital in St. Louis, MO. John has served on the BOD since 2003 on several board committees: Development, Family Services, Treatment Fund, International Relations and Nominating Committee. He also was the Board representative to the Patient Care Council and the Scientific Advisory Council. He will continue to serve on the Patient Care Council.

Anil Vora

Anil is the Vice President and Managing Director of the Finance Division at Oracle Corporation and an NFED dad who has served on the BOD since 2006 and as the President since 2011.  He has served on several board committees: Audit, Budget and Finance, Development; Family Services, Human Resources, Investment, and Strategic Planning Committee.  In addition to being the Board president, he has also served as the Financial Advisor, Vice President, and President.  He will continue to serve on the BOD for one more term.

Thank you for making a difference in the lives of those affected by ectodermal dysplasias!

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