The National Foundation for Ectodermal Dysplasias (NFED) is in a period of exciting growth as we welcome two exceptional additions to our team —Andi Kezh and Isabella Redding. Their roles as Communications Coordinator and Development Coordinator bring critical skills necessary to amplifying our mission, increase our resources, and better support individuals and families affected by ectodermal dysplasias.
Our 24th Halloween Bash is a Spooktacular Success!
We are thrilled to share that our Halloween Bash 2024 was another huge success, raising significant funds to support the NFED mission!
We’re Hiring, Communications Coordinator!
Are you or someone you know passionate about communications and marketing with a desire to make a real difference? Do you believe in the power of storytelling to inspire change? The National Foundation for Ectodermal Dysplasias is looking for a dynamic Communications Coordinator to help us expand our reach and amplify our mission. As a…
We’re Hiring, Development Coordinator!
Are you passionate about nonprofit development and looking to make a meaningful impact? The National Foundation for Ectodermal Dysplasias (NFED) is excited to announce a full-time, remote opening for a Development Coordinator! This is a dynamic role where you’ll support our Director of Development and Communications in executing strategic plans that drive our mission forward….
Welcome Greg Klimovitz, New Director of Development and Communications
We are thrilled to announce that Greg Klimovitz has joined the National Foundation for Ectodermal Dysplasias (NFED) as our new Director of Development and Communications. With 20 years of experience in community development and executive leadership within nonprofit, interfaith and religious organizations, social enterprises, and youth programs, Greg brings a wealth of knowledge and a fresh perspective to our team.
The Stand Together Advocacy Conference Was Awesome
Our Stand Together Advocacy Conference was a whirlwind of excitement and unity! We welcomed not only our families but also care providers and members of other organizations. Our goal was to empower them to advocate for themselves and on Capitol Hill. Watch the highlight reel and read about our great success and new friends made!
Our Impact Report – 2023
Learn how the NFED’s unwavering passion translated into concrete action for our ectodermal dysplasias community. Look back on the expanded support, research advances, and advocacy efforts that shaped 2023. Together, we achieved great things!
How The Stand Together Conference is Unique This Year
This year’s summer event is going to look a little different than other years. Find out what you can expect when you attend the Stand Together Advocacy Conference and how you’ll leave empowered to advocate for yourself at home and on Capitol Hill!