Our donors are more than just contributors at the National Foundation for Ectodermal Dysplasias (NFED). Among these dedicated supporters, our Smile Makers stand out. Hear why George, a long-time supporter, monthly donor, and former NFED Board member, continues to give monthly and what inspires his ongoing commitment to the NFED.
We’re Hiring: Programs and Community Engagement Coordinator
Are you passionate about making a difference in the rare disease community? The National Foundation for Ectodermal Dysplasias (NFED) is looking for a Programs and Community Engagement Coordinator to join our team! As a Programs and Community Engagement Coordinator, you’ll play a key role in ensuring the smooth execution of our programs. From coordinating events…
We Support Vital Research: A Statement on Rare Disease Day
On this last day of February, the rarest of days on the calendar, the NFED celebrates International Rare Disease Day. We acknowledge that we cannot do this work alone.
The NFED is Growing!
The National Foundation for Ectodermal Dysplasias (NFED) is in a period of exciting growth as we welcome two exceptional additions to our team —Andi Kezh and Isabella Redding. Their roles as Communications Coordinator and Development Coordinator bring critical skills necessary to amplifying our mission, increase our resources, and better support individuals and families affected by ectodermal dysplasias.
Our 24th Halloween Bash is a Spooktacular Success!
We are thrilled to share that our Halloween Bash 2024 was another huge success, raising significant funds to support the NFED mission!
We’re Hiring, Communications Coordinator!
Are you or someone you know passionate about communications and marketing with a desire to make a real difference? Do you believe in the power of storytelling to inspire change? The National Foundation for Ectodermal Dysplasias is looking for a dynamic Communications Coordinator to help us expand our reach and amplify our mission. As a…
We’re Hiring, Development Coordinator!
Are you passionate about nonprofit development and looking to make a meaningful impact? The National Foundation for Ectodermal Dysplasias (NFED) is excited to announce a full-time, remote opening for a Development Coordinator! This is a dynamic role where you’ll support our Director of Development and Communications in executing strategic plans that drive our mission forward….
Welcome Greg Klimovitz, New Director of Development and Communications
We are thrilled to announce that Greg Klimovitz has joined the National Foundation for Ectodermal Dysplasias (NFED) as our new Director of Development and Communications. With 20 years of experience in community development and executive leadership within nonprofit, interfaith and religious organizations, social enterprises, and youth programs, Greg brings a wealth of knowledge and a fresh perspective to our team.