Meet Kristin Matus-Kelso, our new Family and Community Programs Coordinator! With 20 years of personal experience in the ectodermal dysplasia community, Kristin is no stranger to the NFED.
NFED Partners with The Aspen Group to Provide Free Dental Care
The National Foundation for Ectodermal Dysplasias (NFED) has been collaborating for over a year with The Aspen Group to create a charitable referral connection for families. We are pleased to announce the formal launch of the Smile Bridge program to provide 15 identified patients free clinical dental care, to include implants, up to their age of 22.
2024 Impact Report: Together We Did More
See the incredible impact you helped make in 2024! From growing global connections to life-changing smiles and advocacy wins, our latest blog highlights the 2024 Impact Report. Don’t miss this inspiring look back!
NFED Unveils Bold New Mission Statement
The NFED has a new mission statement, and it’s all about you. This blog breaks down what’s changed, why it matters, and how it makes our community stronger. Whether you’re living with ectodermal dysplasia or supporting someone who is, this update is all about you—and the brighter future we’re building together. Come take a look!
George’s Smile Maker Story: Why Ongoing Support Matters
Our donors are more than just contributors at the National Foundation for Ectodermal Dysplasias (NFED). Among these dedicated supporters, our Smile Makers stand out. Hear why George, a long-time supporter, monthly donor, and former NFED Board member, continues to give monthly and what inspires his ongoing commitment to the NFED.
We’re Hiring: Programs and Community Engagement Coordinator
Are you passionate about making a difference in the rare disease community? The National Foundation for Ectodermal Dysplasias (NFED) is looking for a Programs and Community Engagement Coordinator to join our team! As a Programs and Community Engagement Coordinator, you’ll play a key role in ensuring the smooth execution of our programs. From coordinating events…
We Support Vital Research: A Statement on Rare Disease Day
On this last day of February, the rarest of days on the calendar, the NFED celebrates International Rare Disease Day. We acknowledge that we cannot do this work alone.
The NFED is Growing!
The National Foundation for Ectodermal Dysplasias (NFED) is in a period of exciting growth as we welcome two exceptional additions to our team —Andi Kezh and Isabella Redding. Their roles as Communications Coordinator and Development Coordinator bring critical skills necessary to amplifying our mission, increase our resources, and better support individuals and families affected by ectodermal dysplasias.