See the incredible impact you helped make in 2024! From growing global connections to life-changing smiles and advocacy wins, our latest blog highlights the 2024 Impact Report. Don’t miss this inspiring look back!
NFED Unveils Bold New Mission Statement
The NFED has a new mission statement, and it’s all about you. This blog breaks down what’s changed, why it matters, and how it makes our community stronger. Whether you’re living with ectodermal dysplasia or supporting someone who is, this update is all about you—and the brighter future we’re building together. Come take a look!
George’s Smile Maker Story: Why Ongoing Support Matters
Our donors are more than just contributors at the National Foundation for Ectodermal Dysplasias (NFED). Among these dedicated supporters, our Smile Makers stand out. Hear why George, a long-time supporter, monthly donor, and former NFED Board member, continues to give monthly and what inspires his ongoing commitment to the NFED.
We’re Hiring: Programs and Community Engagement Coordinator
Are you passionate about making a difference in the rare disease community? The National Foundation for Ectodermal Dysplasias (NFED) is looking for a Programs and Community Engagement Coordinator to join our team! As a Programs and Community Engagement Coordinator, you’ll play a key role in ensuring the smooth execution of our programs. From coordinating events…
We Support Vital Research: A Statement on Rare Disease Day
On this last day of February, the rarest of days on the calendar, the NFED celebrates International Rare Disease Day. We acknowledge that we cannot do this work alone.
The NFED is Growing!
The National Foundation for Ectodermal Dysplasias (NFED) is in a period of exciting growth as we welcome two exceptional additions to our team —Andi Kezh and Isabella Redding. Their roles as Communications Coordinator and Development Coordinator bring critical skills necessary to amplifying our mission, increase our resources, and better support individuals and families affected by ectodermal dysplasias.
Our 24th Halloween Bash is a Spooktacular Success!
We are thrilled to share that our Halloween Bash 2024 was another huge success, raising significant funds to support the NFED mission!
We’re Hiring, Communications Coordinator!
Are you or someone you know passionate about communications and marketing with a desire to make a real difference? Do you believe in the power of storytelling to inspire change? The National Foundation for Ectodermal Dysplasias is looking for a dynamic Communications Coordinator to help us expand our reach and amplify our mission. As a…