Dr. Jon Korostoff is an unsung hero of the National Foundation for Ectodermal Dysplasias (NFED) family. His humble approach to dental care can be misleading because he is truly changing the lives of his ectodermal dysplasias patients.
How to Turn Volunteering into a Presidential Service Award
Helping the NFED as a volunteer can add a Presidential Service Award to your resume or college application. We have numerous ways that you could help as a volunteer. Learn how. We offer several toolkits which make volunteering easy.
Expanding Our Skin, ENT and Eye Expertise
We simply could not put a price tag on the value the volunteer doctors add to our Scientific Advisory Council (SAC) and our organization. We rely on their talents to lead our research program, present educational workshops at Family Conferences, write educational materials and talk with families one-on-one. They bring incredible expertise to our mission. We are honored to have added three new physicians to the SAC.
Families Educate Medical Professionals
Educating medical professionals about ectodermal dysplasia is an important part of our NFED mission. Families played a critical role by volunteering to share their stories and describe the how the rare condition affects them at a Grand Rounds in Fairfax, Va.
Our Powerful Week of Education
Amazing! Wonderful! Informative! Fantastic! Life-Changing! Educational Empowering! Fun! Fascinating! What word best describes our week in Washington D.C.? They all do! For me, it is hard to really describe the impact that week made on our entire community.
The Next Four Family Conference Locations Are…
I am EXCITED to tell you where Family Conference is going to be held for the next four years! One of our goals is always to enable as many people as we can the opportunity to attend at least one of our Family Conferences – and hopefully, more! We do this by keeping registration fees…
Employee Matching Gifts
Make Your Gift Go Further You’ve demonstrated your dedication to the NFED’s work, now ask your employer to do the same! Did you know many companies offer matching gift programs to encourage charitable giving among their employees? Some even match donations made by spouses, retirees, and part-time employees. When you donate to the NFED, your…
Must See In Washington D.C.
Washington D.C. is not just our country’s capitol. It is filled with delicious places to eat, cultural events and filled with American history. You can find it all in D.C. Here are just a few of the many places you can visit while you are there during the Stand Together Conference. You can also view…