I am EXCITED to tell you where Family Conference is going to be held for the next four years! One of our goals is always to enable as many people as we can the opportunity to attend at least one of our Family Conferences – and hopefully, more! We do this by keeping registration fees…
Employee Matching Gifts
Make Your Gift Go Further You’ve demonstrated your dedication to the NFED’s work, now ask your employer to do the same! Did you know many companies offer matching gift programs to encourage charitable giving among their employees? Some even match donations made by spouses, retirees, and part-time employees. When you donate to the NFED, your…
Must See In Washington D.C.
Washington D.C. is not just our country’s capitol. It is filled with delicious places to eat, cultural events and filled with American history. You can find it all in D.C. Here are just a few of the many places you can visit while you are there during the Stand Together Conference. You can also view…
We Appreciate You
On behalf of the NFED, I would like to convey our warmest gratitude for all the wonderful things you have done for us over the past year. Big things and small things, they all mean a lot to us. Your generous donation of your time and expertise helps us accomplish our mission every day. Since…
2016 Annual Impact Report
A Year of PROMISE. Perseverance. GROWTH. Creativity. Celebration. We are very excited to share with you the 2016 Annual IMPACT Report for the National Foundation for Ectodermal Dysplasias (NFED). In it, you can read how you, our families and supporters, have impacted on all areas of our mission. We thank everyone who supported us n…
Family Conference Sponsors Needed
Each year, we hold our Family Conference that provides life-changing experiences for our families at the National Foundation for Ectodermal Dysplasias (NFED). Annually, 300 to 400 people from all over the world and the U.S. get to experience that they are no longer alone. They get to connect with other families and talk to doctors…
Four New Board Members Added
We welcome four new members to the National Foundation for Ectodermal Dysplasias (NFED) Board of Directors: Karl Nelsen, Keith Throm, Marianne Vermeer and Dr. Tim Wright. Volunteering for a Board takes a huge time commitment. Their input is valuable as they steer the NFED and keep us moving forward. Karl Nelsen has been a member of…
Awareness Month Fundraising
We are excited to kick off Ectodermal Dysplasias Awareness Month with your chance to share your customized Facebook Fundraising Page with all of your online friends and family. This is an easy and fun way for you to spread the word, but also to give others the chance to help change lives of those affected…