Sachs Butterfly House at Faust Park (6 minutes from hotel): More than a thousand live tropical butterflies fly freely in the glass conservatory at the Sophia M. Sachs Butterfly House. Watch a butterfly emerge from a chrysalis right before your eyes. Or go outside and visit native and migrating species in the Butterfly Garden. (*$6 general…
NFED Family Conference: Our Family Reunion
by Rachel Buerman Every year, we pack up the family and journey to the NFED Family Conference. We are not natural born travelers. In fact, when it comes to travel we might just be the next National Lampoons movie cast. Despite our chaotic travel skills, one thing is certain, the NFED Conference is always worth…
A Treatment for Corneal Erosions in EEC?
Corneal abnormalities are a major clinical issue encountered by patients affected by ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. EEC is caused by dominant mutations in the p63 gene, meaning that EEC patients have one copy of the normal p63 gene and one copy of the mutant p63 gene. It has been suspected that removing the mutant p63…
FREE Things to do in St. Louis
If you are coming to St Louis before Family Conference or staying after…check out these fun things to do in St Louis. City Garden – Downtown: This outdoor garden includes art, plants and several water features. The water features include a splash pad and two wading pool areas. This is approximately a 25-minute drive from the…
Welcome Home!
By Sue Kluzek I don’t know about you, but I am getting very excited about our NFED Family Conference this summer! It’s an exciting time for all of us. We (the NFED) are celebrating our 35th anniversary. We have new programming and a new format for some of the conference. It’s going to be great!…
Involvement: Get started today!
By Terri Matus, Grandma of Allyson Kelso, Member, Family Support Council and Co-Chair for Rally for Ally There are many reasons to volunteer one’s time for an organization. The obvious one is to be helpful and to assist others in order to enhance the programs provided by the organization, namely, the NFED. I like to think…
Dear NFED volunteers,
We can’t think of a lovelier way to acknowledge all of the hard work you do than by setting aside the month of April to recognize and thank you and all of our volunteers. Just last year alone we had 364 volunteers who dedicated more than 3,652 hours to the NFED. That is truly amazing! …
Need to be Needed? Beverly Meier's Response?
By Cathy Deters The year I retired from a teaching career (2008), I knew I would need to do something to occupy the time I had spent in the classroom. There was a void in my life and I wasn’t sure how to fill it. My dear friend, Beverly Meier, suggested that I volunteer for…